Polymyalgia Rheumatica (PMR) Support Group

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I would like to weigh in about PMR coming on gradually. My symptoms began in Jan....

https://connect.mayoclinic.org/comment/888645/

Discussion: Can PMR come on more gradually?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2023

I will try to answer your questions but I don't have any experience with Kevzara. My...

https://connect.mayoclinic.org/comment/889954/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...

https://connect.mayoclinic.org/comment/889839/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...

https://connect.mayoclinic.org/comment/890554/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2023

Hi @johnarbaugh, You will notice that we moved your post to an existing discussion on tapering...

https://connect.mayoclinic.org/comment/891164/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Not sure this is correct place to respond. Diagnosed 5/23. Started on 30mg of prednisone and...

https://connect.mayoclinic.org/comment/896069/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15, 2023

Hi @ vellen….I just noticed that you have fibromyalgia as well as PMR. I’m thinking I...

https://connect.mayoclinic.org/comment/895420/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...

https://connect.mayoclinic.org/comment/896964/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

I have GCA. I split my prednisone dose after the first week, with my Doctor saying...

https://connect.mayoclinic.org/comment/1023608/

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 9:57am

To update: I had to stop the kevzara due to allergic reactions at the injection site...

https://connect.mayoclinic.org/comment/1026705/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 10:49am

I'm so sorry your doctor misled you and had to quit abruptly. Everything you read says...

https://connect.mayoclinic.org/comment/1027038/

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 7:56pm

Sulfasalazine and other DMARDS. My rheumy recently switched me to my third DMARD. First, I was...

https://connect.mayoclinic.org/comment/1025657/

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 5:14pm

Hi @rocjr1, Welcome to Connect. I think it's always a good plan to discuss options with...

https://connect.mayoclinic.org/comment/1006416/

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30 8:59am

Humira is a TNF inhibitor which isn't likely to help PMR. My experience with Humira was...

https://connect.mayoclinic.org/comment/1008061/

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 9:44pm

"I do a split dose and have been holding the morning to 10 mg and tapering...

https://connect.mayoclinic.org/comment/953246/

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 24, 2023

A low dose of prednisone seems to help many people since they seem to stay on...

https://connect.mayoclinic.org/comment/1002908/

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24 9:44am

Kate, you are lucky. Sounds like you have a great doctor. June, I am sorry you...

https://connect.mayoclinic.org/comment/1019752/

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 9:53am

Hi @ccarrasca, Welcome to Connect. 8 years is a long time for an occurrence of PMR....

https://connect.mayoclinic.org/comment/936365/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2023

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

I'm feeling good! I am slowing tapering down prednisone and the hope is that Kevzara will...

https://connect.mayoclinic.org/comment/933972/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

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