Polymyalgia Rheumatica (PMR) Support Group

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I am so sorry that you are having so many problems. My thoughts and prayers are...

https://connect.mayoclinic.org/comment/988314/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

Hello @barabarene -- I'm glad you are feeling better. Part of the battle with PMR is...

https://connect.mayoclinic.org/comment/180036/

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2018

I have my own theory based on the many comments I have read and from my...

https://connect.mayoclinic.org/comment/630786/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2021

"My understanding of the initial tapering is that there is an assumption that the starting dose...

https://connect.mayoclinic.org/comment/1289247/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2025

Since this past spring I have been up and down a few times because of my...

https://connect.mayoclinic.org/comment/915010/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2023

Having worked there, I would highly recommend sending a written message to your hand surgeon, explaining...

https://connect.mayoclinic.org/comment/81449/

Discussion: I have Dupuytren's Contracture Disease . How can I cope with this?

Support Group: Bones, Joints & Muscles

Posted: Jan 8, 2020

Pmr is such a dilemma. In my 6th year. Original dose was 20mg. Easily got below...

https://connect.mayoclinic.org/comment/1096673/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

I also struggled with taking steroids. I was fairly well educated on the use and damage...

https://connect.mayoclinic.org/comment/1397073/

Discussion: If I choose to take no meds. What is the worst that can happen?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2025

Hello @helpforpmr, welcome to Mayo Connect. We are glad you found us. Connect is a good...

https://connect.mayoclinic.org/comment/137681/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2018

It is very concerning that even with your relatively low numbers the pain is slowly increasing....

https://connect.mayoclinic.org/comment/655192/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2021

Thank you everyone for sharing your experiences. However, the Pfizer vaccine did a number on my...

https://connect.mayoclinic.org/comment/616345/

Discussion: VAERS reporting of symptoms after COVID-19 vaccine

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 13, 2021

Uveitis can be caused by an infection but my eye never had an infection. My uveitis...

https://connect.mayoclinic.org/comment/1131095/

Discussion: Off Prednisone but Residual Stiffness

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2024

@alanbruce, I think eating more is part of it but it's also because prednisone causes the...

https://connect.mayoclinic.org/comment/137685/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2018

At the age of 68, I was in excellent physical condition. I had none of the...

https://connect.mayoclinic.org/comment/880929/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2023

@steelbh I take 1 tbsp daily of Qunol Liquid Turmeric - https://www.amazon.com/Turmeric-Curcumin-Qunol-Bioperine-Supplement/dp/B079T64N8K/ref=sr_1_1_sspa - the serving size...

https://connect.mayoclinic.org/comment/286611/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2020

Yes. First Pfizer vax May 2021. Pain in neck and shoulders all that summer. I bought...

https://connect.mayoclinic.org/comment/821005/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2023

"I found I had typical symptoms of PMR and proceeded to the PCP who would not...

https://connect.mayoclinic.org/comment/1226074/

Discussion: Traveling with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 31, 2025

I had every visual disturbance listed on the Cleveland Clinic link. They were light flashes and...

https://connect.mayoclinic.org/comment/1344571/

Discussion: New onset uveitis while weaning steroids for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2025

I was diagnosed with GCA in January 2020 - my sed rate was 117 - and...

https://connect.mayoclinic.org/comment/303749/

Discussion: What's your experience with Actemra (tocilizumab) for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2020

As @jeff97 has detailed all those things are potential problems from "long term" prednisone use. I...

https://connect.mayoclinic.org/comment/1374954/

Discussion: Still Struggling with that last mile on the path to 0 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20, 2025

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