Polymyalgia Rheumatica (PMR) Support Group

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I started at 10mg last August after a bout with Covid. I stayed at that level...

https://connect.mayoclinic.org/comment/1066021/

Discussion: Has anyone "self-tapered" (increase or decrease prednisone)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2024

i read your story and the same situation applied to me. I am or was an...

https://connect.mayoclinic.org/comment/1063142/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2024

Thank you for your reply, you raise some interesting points. I fully agree with your' statement...

https://connect.mayoclinic.org/comment/1062159/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2024

Thank-you for sharing this information. It is always interesting how other countries treat their medical conditions....

https://connect.mayoclinic.org/comment/1062062/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2024

@csm70 My husband developed PMR in May 2023 and GCA in February 2024. Since developing GCA...

https://connect.mayoclinic.org/comment/1061360/

Discussion: Actemra & Methotrexate for GCA treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3, 2024

So sorry to hear you've had a relapse. I hope you do well on your taper...

https://connect.mayoclinic.org/comment/1060442/

Discussion: GCA Relapse - A Slow Burn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2024

"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...

https://connect.mayoclinic.org/comment/1057041/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

My endocrinologist wasn't exactly an "adrenal specialist" but she had insight into the problem with adrenal...

https://connect.mayoclinic.org/comment/1056816/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

I wouldn't say I'm completely over it but I'm getting close. I sometimes think about everything...

https://connect.mayoclinic.org/comment/1048583/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

How long were you on Kevzara before you could taper off Prednisone? And how long do...

https://connect.mayoclinic.org/comment/1048317/

Discussion: Is it PMR (and/) or Osteoarthritis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

I have a different perspective on this because I’m a daughter of someone with PMR. I...

https://connect.mayoclinic.org/comment/1046360/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2024

Thank you for sharing that. I feel fortunate that I was able to figure out he...

https://connect.mayoclinic.org/comment/1045559/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

HI @glinda47, I was fortunate not to wind up in the ER with Prednisone IV. I...

https://connect.mayoclinic.org/comment/1045476/

Discussion: Does untreated PMR lead to GCA, organ inflammation and osteoporosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...

https://connect.mayoclinic.org/comment/1045355/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

My husband was diagnosed with PMR in May 2023 and Giant Cell Arteritis (GCA) in February...

https://connect.mayoclinic.org/comment/1043812/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2024

I have had PMR for over a year. My markers are high but still negative. I...

https://connect.mayoclinic.org/comment/1042734/

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2024

Yes, you are lucky! I was diagnosed eight months ago and am still on 11 mg...

https://connect.mayoclinic.org/comment/1042362/

Discussion: Finally coming to an end!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2024

You might want to give this tapering plan a try to see if it can help...

https://connect.mayoclinic.org/comment/1041777/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Welcome @veronicamac, Sorry to hear that you have been struggling for 9 years with PMR. When...

https://connect.mayoclinic.org/comment/1041733/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Am also taking risendronate weekly for past 2 years with no side effects. Took prednisone for...

https://connect.mayoclinic.org/comment/1041339/

Discussion: PMR, Osteoporosis and Fosamax?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2024

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