Polymyalgia Rheumatica (PMR) Support Group

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Hello, my name is Kas and I have Polymyalgia. It was discovered while I was in...

https://connect.mayoclinic.org/comment/1108283/

Discussion: Conflict with Rheumatologist over taking Prednisone for PMR in AM/PM

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19, 2024

I was diagnosed with PMR in April 2022 at age 78. I had a mild case...

https://connect.mayoclinic.org/comment/843157/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14, 2023

Hi @suemck, Welcome to Connect. I had trouble tapering off of prednisone for both occurrences I...

https://connect.mayoclinic.org/comment/138091/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17, 2020

@ncgal I was diagnosed with PMR 15 months ago and was prescribed prednisone. The doctor did...

https://connect.mayoclinic.org/comment/1454239/

Discussion: Hair loss from PMR or Steroids?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 6, 2025

Hi Jeff, It’s been a while since I’ve been here. PMR diagnosis in about 2016. Still...

https://connect.mayoclinic.org/comment/1340040/

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2025

I should say I am not pain free. I was lucky and well educated on using...

https://connect.mayoclinic.org/comment/1315524/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2025

I has an increase in headaches, temple pain, and some jaw discomfort and tightness. The doctor...

https://connect.mayoclinic.org/comment/1166581/

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 2, 2024

In my 6th year of pmr. Been below 5 mg several times. A year ago both...

https://connect.mayoclinic.org/comment/1076839/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2024

Hello @patzmar, Welcome to Connect. My Mayo Clinic rheumatologist who diagnosed my PMR started me at...

https://connect.mayoclinic.org/comment/686805/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2022

A while back I posted that I would be trying low-dose naltrexone and would report the...

https://connect.mayoclinic.org/comment/834407/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2023

Hello all, Several folks asked me to report on my Kevzara experience when I could, so...

https://connect.mayoclinic.org/comment/1044434/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

Hello again John. I think your view of PMR symptoms being largely driven by inflammation is...

https://connect.mayoclinic.org/comment/286695/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2020

Hello @pfafpa, You will notice I changed the title of your discussion to hopefully help members...

https://connect.mayoclinic.org/comment/319143/

Discussion: Carpal tunnel symptoms and PMR: What choices do I have?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2020

Question about my first major flare up. First my background: My name is Richard and I...

https://connect.mayoclinic.org/comment/286623/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2020

Do you go to Mayo in Phoenix for most everything? Do you have traditional Medicare or...

https://connect.mayoclinic.org/comment/1140957/

Discussion: Actemra coverage on Medicare in California?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13, 2024

Hi again Dad, Missed your messages. I apologize for not staying more interested…just quite disappointed in...

https://connect.mayoclinic.org/comment/1341229/

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2025

Hi. I'll defer to the support leaders and others for verification/opinions, but my sense is that...

https://connect.mayoclinic.org/comment/668562/

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6, 2022

I was 74 when I developed PMR in January 2024. I was diagnosed and started on...

https://connect.mayoclinic.org/comment/1297315/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2025

My last two attempts at tapering when below 5 mg ignited a swollen painful hands response....

https://connect.mayoclinic.org/comment/934148/

Discussion: Swollen hands, rash with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

I had multiple surgeries on Prednisone. The first one was to repair a "spontaneous" rupture of...

https://connect.mayoclinic.org/comment/1333663/

Discussion: Has anyone had surgery while still on prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2025

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