Polymyalgia Rheumatica (PMR) Support Group

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I have tapered down to 0 due to problems with too much Methylprednisolone in my system....

https://connect.mayoclinic.org/comment/1080188/

Discussion: Tapering and Dealing with a Flareup

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I took DEX for myself. I had self diagnosed myself and I had Dex available. So...

https://connect.mayoclinic.org/comment/1080128/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I never had my IL-6 level checked. However, I'm taking a medication that inhibits the IL-6...

https://connect.mayoclinic.org/comment/1079602/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I stopped prednisone 6 months ago. While tapering stiffness and some pain followed me. I still...

https://connect.mayoclinic.org/comment/1079170/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

I am getting the Kevzara for free. I called Kevzara Connect at 844-538-9272. They are very...

https://connect.mayoclinic.org/comment/1078863/

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

For what it’s worth, my initial presentation of RA at age 62 really looked more like...

https://connect.mayoclinic.org/comment/1078028/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2024

Let me send you a clip from Dadcue on this site. He is a true survivor...

https://connect.mayoclinic.org/comment/1077863/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2024

Hi @begonia77, Welcome to Connect. It sounds like you are doing great with the tapering schedule....

https://connect.mayoclinic.org/comment/1076183/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2024

Hi- I have seronegative spondyloarthropathy, meaning I’m not HLA-B27 positive and my inflammatory markers aren’t elevated....

https://connect.mayoclinic.org/comment/1075435/

Discussion: PMR and Undifferentiated Spondyloarthropathies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2024

@megz Thank you for your explanation of what happened to you and what you've learned about...

https://connect.mayoclinic.org/comment/1073751/

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2024

I hope you will also be able to consult a rheumatologist. My first gp also sent...

https://connect.mayoclinic.org/comment/1073658/

Discussion: Muscles don't seem able to repair themselves.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2024

@dadcue Have you researched to see if prednisone could be the cause? It’s crazy the way...

https://connect.mayoclinic.org/comment/1073540/

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

My Opinion, you have reached the taper point. The kevzara has reduced the PMR inflamation but...

https://connect.mayoclinic.org/comment/1073468/

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

@johnbishop Hi John, Thanks for your response. He doesn't currently have an infection. Our concern is...

https://connect.mayoclinic.org/comment/1073419/

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

My PMR flared for the first time shortly after weight training and also viral exposure on...

https://connect.mayoclinic.org/comment/1072310/

Discussion: Can PMR be induced by Exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

Getting past the 7 mg prednisone barrier can be very difficult. I had the same problem....

https://connect.mayoclinic.org/comment/1072203/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

My rheumatologist told me the opposite. She said if I’m still experiencing pain, PMR is still...

https://connect.mayoclinic.org/comment/1071988/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

I will have to discuss that with my Rheumy. The taper schedule for the ocular prednisone...

https://connect.mayoclinic.org/comment/1070826/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2024

The body needs cortisol to function. When you take prednisone for more than a few weeks,...

https://connect.mayoclinic.org/comment/1070136/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

Has anyone else developed neuropathy after pmr has gone into remission and they have tapered off...

https://connect.mayoclinic.org/comment/1070111/

Discussion: Peripheral Neuropathy and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

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