Polymyalgia Rheumatica (PMR) Support Group | Page 21

@kathy22wright Thank you so much for your comments! The frustrations that I felt after leaving the...

https://connect.mayoclinic.org/comment/1516336/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 8:46am

@diegory My 50# weight gain was probably within the first 5 years of starting Prednisone for...

https://connect.mayoclinic.org/comment/1515919/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 2:03pm

@dadcue Excellent dialogue between “Seashell” and yourself. Very informative and knowledgeable advice. Advice that I will...

https://connect.mayoclinic.org/comment/1515044/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26 10:55am

I gained 20 lb in the first couple months of taking prednisone so I asked if...

https://connect.mayoclinic.org/comment/1514106/

Discussion: Has anyone lost weight with PMR/GCA on high dose Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 7:16am

It has been a year since my PMR diagnosis and starting on prednisone. I have tapered...

https://connect.mayoclinic.org/comment/1513502/

Discussion: Just looking for help and suggestions on prednisone withdrawals,

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24 9:56am

I lost about 15 pounds when I was on Prednisone. I was on 60 mg./day for...

https://connect.mayoclinic.org/comment/1513287/

Discussion: Has anyone lost weight with PMR/GCA on high dose Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24 6:39am

I think it depends on how long you stay on Prednisone, I had two distinct experiences...

https://connect.mayoclinic.org/comment/1511466/

Discussion: When did your prednisone side effects end?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 5:19pm

@judyb43 In an ideal world ... tapering off Prednisone as soon as possible is the best...

https://connect.mayoclinic.org/comment/1508962/

Discussion: Low blood sugar on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 2:10pm

You've done something very dangerous by dropping from 20 mg a day down to zero. Even...

https://connect.mayoclinic.org/comment/1506284/

Discussion: Just looking for help and suggestions on prednisone withdrawals,

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 10:03am

PMR diagnosis October 1 2025. Started RINVOQ January 1, 2026. Stopped Methotrexate and tapering off prednisone....

https://connect.mayoclinic.org/comment/1505009/

Discussion: Who is on Rinvoq for GCA vs Actemra?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13 2:37pm

@pah17 once on Prednisone I could function normally but felt the intensity of the steroid and...

https://connect.mayoclinic.org/comment/1504635/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13 8:18am

@pah17 This disease has done a number on me. I’m a 78 year old female, on...

https://connect.mayoclinic.org/comment/1504560/

Discussion: Irregular heartbeat issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13 5:58am

Just about the time of my diagnosis, I read about the clinical trials with Rinvoq and...

https://connect.mayoclinic.org/comment/1504062/

Discussion: Who is on Rinvoq for GCA vs Actemra?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12 12:28pm

@linnead Been there, know that feeling. Kevzara was/is my savior. I resisted going on Kevzara too…..”not...

https://connect.mayoclinic.org/comment/1501415/

Discussion: Off Prednisone but still feeling new type of pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 6:38am

I have had PMR for 13 months and have tapered to 5 mg. prednisone. I find...

https://connect.mayoclinic.org/comment/1501301/

Discussion: Off Prednisone but still feeling new type of pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 9:33pm

@mezack25 Tylenol helps me now: it didn’t work at first… I’ve been on prednisone for 20...

https://connect.mayoclinic.org/comment/1500803/

Discussion: Off Prednisone but still feeling new type of pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 10:27am

@cheraloha I think the "difference" is how how much faster you can taper down and hopefully...

https://connect.mayoclinic.org/comment/1500362/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 2:25pm

@terryartist Last spring I traveled to the Netherlands after being diagnosed with PMR in Feb. I...

https://connect.mayoclinic.org/comment/1500093/

Discussion: Heat affects stamina?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 9:54am

All I know is prednisone tapering messes with cortisol and our bodies are trying to adjust...

https://connect.mayoclinic.org/comment/1499384/

Discussion: Random rapid heart rate tapering off of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6 10:23am

@lori62yb I started kevzara at 5 mg of prednisone 3 months ago. I have tapered to...

https://connect.mayoclinic.org/comment/1499375/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6 10:11am