Polymyalgia Rheumatica (PMR): Discussions | Page 194

My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....

https://connect.mayoclinic.org/comment/1289092/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 3:59pm

For now, I am happy to know that Actemra can be easily stopped. Prednisone can't be...

https://connect.mayoclinic.org/comment/1289200/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 7:22pm

My doctor diagnosed me with PMR in December. He only started me on 4 mg of...

https://connect.mayoclinic.org/comment/1288844/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 10:27am

My understanding of the initial tapering is that there is an assumption that the starting dose...

https://connect.mayoclinic.org/comment/1289228/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 8:12pm

It raises some questions though if you start taking prednisone again once you've stopped, or even...

https://connect.mayoclinic.org/comment/1206283/

Discussion: Titration down in steroids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 5:48pm

Im new to PMR and all this is very eye opening. I’m beginning tapering and am...

https://connect.mayoclinic.org/comment/1206718/

Discussion: Titration down in steroids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8 10:42am

I have had swollen ankles, feet and calves all along, but it has gotten worse while...

https://connect.mayoclinic.org/comment/1229203/

Discussion: Decrease in swelling after tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 4 9:51am

Hi, I have been on Kevzara about a year. I think it is working but tappering...

https://connect.mayoclinic.org/comment/1141753/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

Dear Dr. Megan, Thank you so much for posting this for me and anyone else who...

https://connect.mayoclinic.org/comment/1231095/

Discussion: Prednisone love/hate support group

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6 8:12pm

You know, I hurt all over all the time to some extent, so I'm not one...

https://connect.mayoclinic.org/comment/1219594/

Discussion: Aging

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 9:40am

At my original PMR diagnosis, my ESR was 75. Two weeks and 30mg prednisone later, my...

https://connect.mayoclinic.org/comment/1219973/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 5:23pm

DadCue, two points you make 'jump' out at me relating to me and the stage I...

https://connect.mayoclinic.org/comment/1220719/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24 3:00pm

"The Dr may have different plans but you call the shots. You're the one going through...

https://connect.mayoclinic.org/comment/1220318/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24 8:05am

Thanks for the info about alternatives to prednisone. Hopefully, my tapering will go as planned because...

https://connect.mayoclinic.org/comment/1221651/

Discussion: Getting COVID, Flu etc vaccines while treating for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 5:32pm

Prednisone also made me feel worse the longer I took it. For me, feeling worse on...

https://connect.mayoclinic.org/comment/1223872/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 28 11:16am

I take the advice of a naturopathic MD as well as my PCP (haven't found a...

https://connect.mayoclinic.org/comment/1224271/

Discussion: Saying Goodbye and Thank You ALL

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 28 10:14pm

How long were you on 4 mg.? Has it controlled your symptoms? What I've learned in...

https://connect.mayoclinic.org/comment/1239291/

Discussion: Fear

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17 2:19pm

Thanks Jeff, I started at 20mg in December and tapered to my current dose of 12.5....

https://connect.mayoclinic.org/comment/1240067/

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 2:37pm

I was diagnosed with GCA in Feb. 2025, started immediately on 50mg Prednisone. After two weeks...

https://connect.mayoclinic.org/comment/1301925/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11 2:30pm

Has anyone had experience with purchasing LDN through AgelessRx? I just applied for it through them....

https://connect.mayoclinic.org/comment/1303369/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13 1:21pm

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