Polymyalgia Rheumatica (PMR) Support Group | Page 18

@smj Happy Early birthday. I will be 80 in a few weeks and had a good...

https://connect.mayoclinic.org/comment/1522784/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 7:40pm

@naples3 I'm sorry to hear you haven't had better results with prednisone treatment. I was very...

https://connect.mayoclinic.org/comment/1522534/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 1:45pm

@tuckerp I doubt it ... unless I push harder to come off Actemra. I have mentioned...

https://connect.mayoclinic.org/comment/1521618/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 9:48am

@thereselefever I tapered off prednisone on February 20… I had occasional itching with hives while on...

https://connect.mayoclinic.org/comment/1521498/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 8:05am

The research effort was something we could only dream about in the not so distant past....

https://connect.mayoclinic.org/comment/1520933/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6 10:58am

@sandranovicki74 "Why stay on Kevzara if your blood inflammation levels are low? Don't have the names...

https://connect.mayoclinic.org/comment/1520733/

Discussion: LOW WHITE BLOOD COUNT FROM KEVZARA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6 7:39am

@dadcue so far I'm quite satisfied with my Rheumatologist. Since there is still concern about GCA...

https://connect.mayoclinic.org/comment/1520623/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5 11:51pm

Welcome @gypsyrozbud, We also have a lot of great members here on Connect that are PMR...

https://connect.mayoclinic.org/comment/1520536/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5 6:32pm

@jeff97 "I guess the biologics really are important for getting people off of prednisone faster." -------------------...

https://connect.mayoclinic.org/comment/1519513/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 12:46pm

@caroljeand "It’s not what I’m used to -- too long in this state would cause depression."...

https://connect.mayoclinic.org/comment/1519287/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 9:11am

https://connect.mayoclinic.org/comment/1519279/

Discussion: Possible PMR diagnosis - but legs only

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 9:08am

@pah17 Has anyone suggested you get an ultrasound of the temporal arteries? I was diagnosed with...

https://connect.mayoclinic.org/comment/1517515/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 10:23pm

@pah17 Please be careful regarding possible GCA. I came close to losing some vision. so it...

https://connect.mayoclinic.org/comment/1516914/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 6:33am

@dadcue I was in the ER all day yesterday. I had an MRI done of my...

https://connect.mayoclinic.org/comment/1515931/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 2:27pm

When my PMR started, 6/2024, I typically weighed in around 175- 180. I started prednisone at...

https://connect.mayoclinic.org/comment/1514709/

Discussion: Has anyone lost weight with PMR/GCA on high dose Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 9:46pm

@gmdb "...not a single doctor I have seen has mentioned it." ---------------------------- I'm not surprised because...

https://connect.mayoclinic.org/comment/1513149/

Discussion: Just looking for help and suggestions on prednisone withdrawals,

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23 8:00pm

@abbeyc The truth is doctors only practice what they are taught in school, the diagnosis and...

https://connect.mayoclinic.org/comment/1512709/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23 9:54am

@isabelle7 I was diagnosed with GCA in April 2025 and was questioned about weight loss as...

https://connect.mayoclinic.org/comment/1511954/

Discussion: Has anyone lost weight with PMR/GCA on high dose Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22 10:40am

In July 2024, I was diagnosed with PMR/GCA and began 60 mg. of Prednisone daily. With...

https://connect.mayoclinic.org/comment/1510902/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 6:23am

@pmrsuzie It was depressing news to me too when I found out after 12 years of...

https://connect.mayoclinic.org/comment/1510762/

Discussion: Titration steroids using Tyenne but now at a stuck point

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 6:55pm