Polymyalgia Rheumatica (PMR) Support Group

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Hi @everettcatlin, There are a couple of other discussions you might find helpful for tapering off...

https://connect.mayoclinic.org/comment/841286/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2023

Similar experience after Covid booster. 7 months of Prednisone taper with symptoms improved, but creeped back...

https://connect.mayoclinic.org/comment/838113/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2023

One of the worst aspects of PMR, for me, is that the treatment (prednisone) works but...

https://connect.mayoclinic.org/comment/836898/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2023

Thanks for these comments. My insurer and medical provider are the same entity, Kaiser Permanente. Getting...

https://connect.mayoclinic.org/comment/834268/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2023

What sort of side effects have you people had taking 60 mg prednisone ? And at...

https://connect.mayoclinic.org/comment/833129/

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2023

How did you feel about PMR being treated with prednisone? I still struggle with that issue...

https://connect.mayoclinic.org/comment/832442/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2023

I have been tapering down from 10mg. of prednisone starting April 2022 when I was first...

https://connect.mayoclinic.org/comment/832045/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

Well ... where should I begin? I was diagnosed with reactive arthritis with uveitis some 20...

https://connect.mayoclinic.org/comment/831130/

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24, 2023

Wow that is quite a history. Sounds like the tocilizumab has really helped. That's good to...

https://connect.mayoclinic.org/comment/826184/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Hi! I'm new to this group as I was diagnosed with PMR in December 2022. I...

https://connect.mayoclinic.org/comment/825777/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

Now 9 days into LDN use. I have been experimenting and I still do not have...

https://connect.mayoclinic.org/comment/824837/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12, 2023

Ankylosing Spondylitis (AS) https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808#:~:text=Ankylosing%20spondylitis%2C%20also%20known%20as,be%20difficult%20to%20breathe%20deeply. There are several types of spondylitis but AS is the more common...

https://connect.mayoclinic.org/comment/824139/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

I have tapered from 5 mg prednisone to 4 3/4 the last two days and find...

https://connect.mayoclinic.org/comment/823890/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

DSNS didn't work for me either. I noticed the person who promotes this tapering plan says...

https://connect.mayoclinic.org/comment/823441/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2023

I think the prednisone is causing the hunger. I've gained 40lbs! in about a year! Never...

https://connect.mayoclinic.org/comment/821976/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2023

My first pains occured within a week after my second Pfizer vaccination (March 2021) and took...

https://connect.mayoclinic.org/comment/819744/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2, 2023

Yes ... you are correct about doing a slow taper. The questions that nobody has ever...

https://connect.mayoclinic.org/comment/819452/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2023

Your story is very interesting. It seems to confirm what I've seen from others with PMR:...

https://connect.mayoclinic.org/comment/819440/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2023

Just my opinion but I feel that pain should be gone or nearly gone before starting...

https://connect.mayoclinic.org/comment/818764/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

Thanks for your reply. My pain is not GCA related, it is in my hips, shoulders,...

https://connect.mayoclinic.org/comment/818462/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27, 2023

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