Polymyalgia Rheumatica (PMR) Support Group

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I had very little success tapering off prednisone during my 12 years years of being treated...

https://connect.mayoclinic.org/comment/874035/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

My PMR/GCA symptoms became apparent on January 14, 2023 and I was diagnosed with PMR on...

https://connect.mayoclinic.org/comment/873781/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

I have been off and on prednisone for about 30 years. At the beginning I could...

https://connect.mayoclinic.org/comment/872112/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

Hello @leon1649, I think the average length of time for most folks with PMR to get...

https://connect.mayoclinic.org/comment/871715/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2023

It took time for me to get used to the idea of having PMR along with...

https://connect.mayoclinic.org/comment/870905/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2023

Thank you for your input. I'm in my 2nd injection of Actemra and they tapered my...

https://connect.mayoclinic.org/comment/870259/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Hi @nyxgirl, I had symptoms of PMR and other strange symptoms for over a year until...

https://connect.mayoclinic.org/comment/869948/

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2023

Hi, yes. I have experienced severe side effects. High blood pressure, high A1C, memory loss, severe...

https://connect.mayoclinic.org/comment/868874/

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Hello @jonnydonny, Welcome to Connect. You will notice that we moved your post to an existing...

https://connect.mayoclinic.org/comment/868859/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I have been taking prednisone since March 1, 2023. My bloodwork in December was (excellent) per...

https://connect.mayoclinic.org/comment/868826/

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I started on 10 mg and had close to 100 % resolution of symptoms within 48...

https://connect.mayoclinic.org/comment/868428/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Actually, and happily, it does resolve in most cases, after 1-5 years. It’s a self-limited auto-immune...

https://connect.mayoclinic.org/comment/868413/

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I am 68 and have been dealing with PMR diagnosis for going on four years. It...

https://connect.mayoclinic.org/comment/867593/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2023

Hi @sheralee, I just had my first Kevzara injection on Tuesday. So far, so good. No...

https://connect.mayoclinic.org/comment/867174/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2023

I'm glad to hear the LDN is helping, even if it's not enough to completely replace...

https://connect.mayoclinic.org/comment/865851/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2023

Hello. I am scheduled to have TKR in 60 days but just got diagnosis for PMR....

https://connect.mayoclinic.org/comment/863933/

Discussion: TKR and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2023

I'm a 52 year old male, and just got diagnosed with PMR about 10 days ago,...

https://connect.mayoclinic.org/comment/862798/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2023

My rheumatologist says he considers Actemra and Kavzara very similar and expects very similar results if...

https://connect.mayoclinic.org/comment/861867/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2023

I have seronegative spondyloarthropathy diagnosed as reactive arthritis. I was HLA-B27+ along with uveitis and excruciating...

https://connect.mayoclinic.org/comment/861552/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

Wow. My father has PMR (and may or may not have had GCA) and is very...

https://connect.mayoclinic.org/comment/861232/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

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