Polymyalgia Rheumatica (PMR) Support Group

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So if I understand.. is the pace of adrenal recovery the driver for pace of prednisone...

https://connect.mayoclinic.org/comment/1070354/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

I see many on here many are using Kevzara. I looked up Kevzara and it reduces...

https://connect.mayoclinic.org/comment/1070090/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

I am still on prednisone and tapering. At 4.5 mg. What has helped me tremendously is...

https://connect.mayoclinic.org/comment/1069394/

Discussion: Kevzara and prednisone for almost a year-

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2024

Yes there is an a.m. cortisol level test that should be done in the morning. Because...

https://connect.mayoclinic.org/comment/1068294/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2024

No relapse?? I had some unplanned "interruptions" of Actemra but I relapsed. My symptoms went away...

https://connect.mayoclinic.org/comment/1068116/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2024

I feel for you I have struggled on 2mg but just gritting my teeth as I...

https://connect.mayoclinic.org/comment/1067969/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

Our government doesn't get overly involved in medical decisions except for granting FDA approval of the...

https://connect.mayoclinic.org/comment/1067333/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2024

That's interesting!!! I have never tried Dexamethasone but I can see how a stronger steroid might...

https://connect.mayoclinic.org/comment/1067278/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2024

To answer your first question: YES! I have been on Prednisone for about 18 months and...

https://connect.mayoclinic.org/comment/1067079/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2024

I’ve been dealing with my nhi to try to get approved for Kevzara but truth is...

https://connect.mayoclinic.org/comment/1066379/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2024

I adjust my prednisone according to what seems right for me in my slow taper journey....

https://connect.mayoclinic.org/comment/1066376/

Discussion: Has anyone "self-tapered" (increase or decrease prednisone)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2024

Has anyone had major surgery just before PMR came about. I had major neck surgery on...

https://connect.mayoclinic.org/comment/1065908/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2024

Seems like this is a common issue. I had mild osteoarthritis in one joint of one...

https://connect.mayoclinic.org/comment/1064334/

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2024

I too have hand and wrist pain. Im 58 and have trouble with finite hand motor...

https://connect.mayoclinic.org/comment/1063779/

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7, 2024

I, too, have PMR and GCA (giant cell arteritis). Be very aware of issues with anxiety...

https://connect.mayoclinic.org/comment/1062812/

Discussion: Actemra & Methotrexate for GCA treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2024

Hydrocortisone was the suggestion I received when I got to 3 mg. It was just a...

https://connect.mayoclinic.org/comment/1062365/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2024

There is an abundance of 'trial and error' when treating any medical condition. No two people...

https://connect.mayoclinic.org/comment/1062217/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2024

@dadcue I'm not sure if I've responded to this before but in case I haven't. Thank...

https://connect.mayoclinic.org/comment/1058457/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27, 2024

@jrp11948 and @321design -- good morning -- may I ask - are you in a Groundhog...

https://connect.mayoclinic.org/comment/1054148/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2024

I was diagnosed with PMR in December 2023 but the symptoms began in late August. The...

https://connect.mayoclinic.org/comment/1052591/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

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