Polymyalgia Rheumatica (PMR) Support Group | Page 16

@shemil47 Yes, I am feeling better. Many of my symptoms are better, a few are very...

https://connect.mayoclinic.org/comment/1524472/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 11 8:52am

@dadcue Thank you so much for your input! I visited my rheumatologist yesterday! I will be...

https://connect.mayoclinic.org/comment/1523692/

Discussion: Classic PMR symptoms but...

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10 7:18am

@elleninz I started Tyenne in January. My doctor Dx GCA in early Nov and tried to...

https://connect.mayoclinic.org/comment/1523650/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10 6:00am

@laurenand Thanks. Very pleased to hear your rheumatologist is aiming to get you off prednisone completely....

https://connect.mayoclinic.org/comment/1523597/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9 11:02pm

Yes, Mike, I am off prednisone. I began taking it in April of last year when...

https://connect.mayoclinic.org/comment/1522449/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 12:05pm

I’m self injecting 200mg/1.14ml of Kevzara every 2 weeks and just gave myself injection #5. This...

https://connect.mayoclinic.org/comment/1522391/

Discussion: When to taper prednisone when starting kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 11:06am

@emrose If you start Rinvoq ... please let everyone know how it works. These newer medications...

https://connect.mayoclinic.org/comment/1522269/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 8:50am

@ronludington There are so many things that "contribute" to our overall pain levels. I think Actemra...

https://connect.mayoclinic.org/comment/1520793/

Discussion: PMR on Kevzara — Normal CRP but Still in Pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6 8:47am

I had cataract surgery 3 months after I stopped KEVZARA. It worked well to reduce and...

https://connect.mayoclinic.org/comment/1520599/

Discussion: Anyone have cataract surgery while on Kevzara?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5 9:56pm

@pah17 I want to say thank-you for posting this topic. It triggered an interesting discussion. There...

https://connect.mayoclinic.org/comment/1520541/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5 6:50pm

@jeff97 My uveitis flares were mostly unilateral. The majority of the flares were only in my...

https://connect.mayoclinic.org/comment/1519723/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 4:34pm

I experienced hives off and on while I was on prednisone. Not sure what pressure hives...

https://connect.mayoclinic.org/comment/1519247/

Discussion: Actrema and pressure hives

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 8:40am

@randersonccc Just my opinion about Actemra along with some personal experience. Actemra is a "targeted" biologic...

https://connect.mayoclinic.org/comment/1517810/

Discussion: Biologic Medications-Video about how to decide what is right for you.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2 10:40am

First, welcome to the world of "It doesn't make sense". Being a doctor one would think...

https://connect.mayoclinic.org/comment/1516236/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 6:18am

@kathy22wright I fell the same. I started on 20mg of prednisone last December and after some...

https://connect.mayoclinic.org/comment/1511710/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22 6:16am

@caroljeand Let's hope so! I don't want to stop the celebration but the game isn't over...

https://connect.mayoclinic.org/comment/1511299/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 1:24pm

@pmrsuzie Cortisol levels aren't checked very often as we taper off Prednisone for a couple of...

https://connect.mayoclinic.org/comment/1510700/

Discussion: Titration steroids using Tyenne but now at a stuck point

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 5:11pm

@caroljeand I just made an appointment with an endocrinologist for help with prednisone tapering. I've had...

https://connect.mayoclinic.org/comment/1508743/

Discussion: Low blood sugar on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 9:55am

@retiredphil Approximately….Started Kevzara 3/30/2025, prednisone was at 8, tapered off prednisone by 7/15 2025. No PMR...

https://connect.mayoclinic.org/comment/1507588/

Discussion: Titration steroids using Tyenne but now at a stuck point

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16 5:33pm

In Sept 2025 I first noticed stiffness and pain in my left hand and arm. This...

https://connect.mayoclinic.org/comment/1504723/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13 9:39am