Polymyalgia Rheumatica (PMR) Support Group

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Comments (2,973)

I passed on taking Leflunomide after reading it can take 2 years to leave your body....

https://connect.mayoclinic.org/comment/1117457/

Discussion: Anyone having a lot of problems while taking leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4 7:34am

I tried Kevzara. I felt great and easily tapered down on prednisone. After two months my...

https://connect.mayoclinic.org/comment/1117992/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4 10:17pm

Hi🤗 so glad you're in this group as everyone is very supportive. side effects if prednisone...

https://connect.mayoclinic.org/comment/1115400/

Discussion: First visit rheumatologist tomorrow-questions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31 3:51pm

Seems a strange response to me. I can't even imagine the Dr's thinking. I was not...

https://connect.mayoclinic.org/comment/1115602/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31 11:08pm

YES! This happened to my father. Well, there’s no way to be 100% sure, but more...

https://connect.mayoclinic.org/comment/1034403/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16 12:26am

My experience was the same. Tapering off Prednisone is uncomfortable and painful even when PMR isn't...

https://connect.mayoclinic.org/comment/1120237/

Discussion: Flareups, Prednisone, Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8 4:15pm

Thank you for sharing that study. I found it very interesting. I was diagnosed with PMR...

https://connect.mayoclinic.org/comment/855234/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2023

I am approaching my 2 year anniversary of being on Prednisone and am down to 3...

https://connect.mayoclinic.org/comment/816515/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24, 2023

My husband developed PMR in May 2023 and GCA (giant cell arteritis) in February 2024. Three...

https://connect.mayoclinic.org/comment/1043864/

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1 6:23pm

@susanew, My first time with PMR it took 3 and half years to taper off of...

https://connect.mayoclinic.org/comment/1125046/

Discussion: Weaning off Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 16 5:29pm

Hmmmm. I am not sure what I said here that led you to think I am...

https://connect.mayoclinic.org/comment/908804/

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2023

Thank you so much for your feedback. It is greatly appreciated! I will definitely be mentioning...

https://connect.mayoclinic.org/comment/1022649/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 6:51pm

Hi reesh, At 70, It wasn't too hard for me to come to terms with PMR...

https://connect.mayoclinic.org/comment/618070/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19, 2021

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