Polymyalgia Rheumatica (PMR) Support Group

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"The most common adverse reactions (incidence of at least 5%): upper respiratory tract infections, nasopharyngitis, headache,...

https://connect.mayoclinic.org/comment/914596/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2023

Kspowell, I have had the same PN in the balls and toes of both feet for...

https://connect.mayoclinic.org/comment/913335/

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2023

I was diagnsed with PMR at the end of June this year. Every morning I would...

https://connect.mayoclinic.org/comment/911591/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

I was diagnosed in 2020 with PMR by my family doctor. He treated me for a...

https://connect.mayoclinic.org/comment/910857/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2023

What I meant by the pain setting in is when my doctor had me go from...

https://connect.mayoclinic.org/comment/910338/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2023

I started MXT about two months ago. I’ve been on prednisone since December. Started at 40mg...

https://connect.mayoclinic.org/comment/909890/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2023

I was tapering down from 20mg to 10 mg of prednisone at 2.5mg per week. It...

https://connect.mayoclinic.org/comment/908478/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2023

You should ask your doctor for prescriptions for 2.5 mg and 1 mg prednisone tablets. They...

https://connect.mayoclinic.org/comment/908240/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

I am on 15mg prednisone for PMR (since 6/27) and wanted to go down to 12...

https://connect.mayoclinic.org/comment/908205/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

I’m sorry this is happening. It’s so frustrating to have what sounds like a flare after...

https://connect.mayoclinic.org/comment/903856/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Adia, Like you I have had tapering problems, though I have had PMR longer, over 2...

https://connect.mayoclinic.org/comment/903835/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

It can take a few days, but if you're not experiencing full relief and are on...

https://connect.mayoclinic.org/comment/903136/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 27, 2023

It must be difficult having been on prednisone for such a long time @gaylerenee. You might...

https://connect.mayoclinic.org/comment/897865/

Discussion: Weaning off long term use of prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2023

Hi there- So sorry to hear about your pain, and the hair loss. I'm not a...

https://connect.mayoclinic.org/comment/897058/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2023

My doctor started me on 15mg prednisone for 14 days with a prescription to fill of...

https://connect.mayoclinic.org/comment/896680/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

@vellen and @emo, It definitely makes sense and puts the emphasis on listening to your body...

https://connect.mayoclinic.org/comment/896612/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

I have fibromyalgia and a different inflammatory arthritis (not PMR), and the medication I take for...

https://connect.mayoclinic.org/comment/896386/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15, 2023

Having multiple conditions isn't ideal under any circumstance. When Actemra worked so well for PMR, I...

https://connect.mayoclinic.org/comment/895441/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

I have been on prednisone for over 5 years for fibromyalgia. Several times I have tapered...

https://connect.mayoclinic.org/comment/894683/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2023

Oh gosh; forcing myself to eat breakfast while on prednisone makes me uncomfortable all day. Never...

https://connect.mayoclinic.org/comment/893738/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11, 2023

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