Polymyalgia Rheumatica (PMR) Support Group

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Sara, I wish I could say that gummies are the answer for weight loss. I think...

https://connect.mayoclinic.org/comment/908568/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2023

I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...

https://connect.mayoclinic.org/comment/909656/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2023

Hello @chzuck, I see that you have already met another new member @kipster and I would...

https://connect.mayoclinic.org/comment/911028/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2023

Thanks for your reply John. My rheumatologist has said a few times that I may end...

https://connect.mayoclinic.org/comment/620474/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 27, 2021

Hi @mpm, You definitely need to advocate for yourself. My Mayo rheumatologist started me on 20...

https://connect.mayoclinic.org/comment/916054/

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20, 2023

I have peripheral neuropathy too. It was confirmed by an EMG and a nerve conduction study...

https://connect.mayoclinic.org/comment/842749/

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13, 2023

Okay, just about ready to give up. On 17.5 Prednisone down from 20 started in April....

https://connect.mayoclinic.org/comment/921096/

Discussion: Polymyalgia Rheumatica treatment options

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29, 2023

I am 57 years old and have had PMR for 2 years now. Started on 20...

https://connect.mayoclinic.org/comment/69250/

Discussion: Polymyalgia Rheumatica treatment options

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2012

Hi Fam, I was recently diagnosed (May 2023) and am/was a very healthy 76 year old....

https://connect.mayoclinic.org/comment/926295/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 8, 2023

Hi @fam8284, I understand your reluctance to take Prednisone, but most people who suffer from PMR...

https://connect.mayoclinic.org/comment/926562/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 8, 2023

I was diagnosed with PMR when 72. It came as a big shock as I was...

https://connect.mayoclinic.org/comment/926694/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 8, 2023

When I tapered off to 0, my hands were painful and the middle finger of my...

https://connect.mayoclinic.org/comment/956714/

Discussion: Morning misery: Is prednisone effective 24 hrs? PMR and hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 31, 2023

I was diagnosed with PMR in Feb of this year (2023) and I’m now on 1/2...

https://connect.mayoclinic.org/comment/958215/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2023

@curtvapor How long have you taken Actemra? My adrenals recovered in spite of 12 years of...

https://connect.mayoclinic.org/comment/959039/

Discussion: Tapering and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 4, 2023

I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...

https://connect.mayoclinic.org/comment/959298/

Discussion: Tapering and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

I am a few weeks into PMR, having good results with prednisone and now starting my...

https://connect.mayoclinic.org/comment/942277/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2023

WOW ! I told @paulagcl Paula in a private message that she was the PMR patient...

https://connect.mayoclinic.org/comment/892507/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

I don't know all the details but it was 28% of people who were not doing...

https://connect.mayoclinic.org/comment/937114/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2023

I just had my telephone consult with my "specialty pharmacist". She asked if I had any...

https://connect.mayoclinic.org/comment/938417/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2023

I was on prednisone for 12 years primarily for the treatment of PMR. I have multiple...

https://connect.mayoclinic.org/comment/882846/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

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