Polymyalgia Rheumatica (PMR) Support Group

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I have been taking prednisone since March 1, 2023. My bloodwork in December was (excellent) per...

https://connect.mayoclinic.org/comment/868826/

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Hi, yes. I have experienced severe side effects. High blood pressure, high A1C, memory loss, severe...

https://connect.mayoclinic.org/comment/868874/

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Yikes, I agree... FYI, when I mentioned a pain specialist, I did not mean a pain...

https://connect.mayoclinic.org/comment/879206/

Discussion: Breakthrough Pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2023

My PMR/GCA symptoms became apparent on January 14, 2023 and I was diagnosed with PMR on...

https://connect.mayoclinic.org/comment/873781/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

I had very little success tapering off prednisone during my 12 years years of being treated...

https://connect.mayoclinic.org/comment/874035/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

I was diagnosed with PMR in April 2022. Started on 15mg of Prednisone and after 4...

https://connect.mayoclinic.org/comment/876817/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

Prednisone is not a cure for PMR. Since the cause and nature of our disease are...

https://connect.mayoclinic.org/comment/876480/

Discussion: Breakthrough Pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

Hi @nyxgirl, I had symptoms of PMR and other strange symptoms for over a year until...

https://connect.mayoclinic.org/comment/869948/

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2023

(Male, 68 y) PMR started one and half year ago very suddenly, was healthy till then....

https://connect.mayoclinic.org/comment/855389/

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2023

It took time for me to get used to the idea of having PMR along with...

https://connect.mayoclinic.org/comment/870905/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2023

Thank you for your input. I'm in my 2nd injection of Actemra and they tapered my...

https://connect.mayoclinic.org/comment/870259/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

I have seronegative spondyloarthropathy diagnosed as reactive arthritis. I was HLA-B27+ along with uveitis and excruciating...

https://connect.mayoclinic.org/comment/861552/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

Wow. My father has PMR (and may or may not have had GCA) and is very...

https://connect.mayoclinic.org/comment/861232/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

I haven't had GCA but have had 2 occurrences of PMR. First time took 3 and...

https://connect.mayoclinic.org/comment/848777/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2023

I have been off and on prednisone for about 30 years. At the beginning I could...

https://connect.mayoclinic.org/comment/872112/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

Hello @leon1649, I think the average length of time for most folks with PMR to get...

https://connect.mayoclinic.org/comment/871715/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2023

Tapering failures are very common, almost the norm. I've been on prednisone for 2.5 years and...

https://connect.mayoclinic.org/comment/903854/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

I've posted to this thread before, but I happen to be a registered dietitian who eats...

https://connect.mayoclinic.org/comment/907293/

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 3, 2023

I am dismayed by the pain some experience because of bad tapering advice. If you felt...

https://connect.mayoclinic.org/comment/694130/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

See if you can get an RX for the 1 mg and 2.5 mg prednisone tablets....

https://connect.mayoclinic.org/comment/696728/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 7, 2022

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