Polymyalgia Rheumatica (PMR) Support Group

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It's amazing that you tapered that fast. I don't see an endocrinologist, so I don't know...

https://connect.mayoclinic.org/comment/1160496/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

Addendum: The following excerpt are the words of a true expert on the subject. She told...

https://connect.mayoclinic.org/comment/1159317/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

Yes I was just diagnosed with GCA after having PMR for over a year. Diagnosis confirmed...

https://connect.mayoclinic.org/comment/1157802/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2024

I like to share my personal experience. I was on Prednisone for more than 12 years...

https://connect.mayoclinic.org/comment/1156086/

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

I wouldn't listen to everything you read on PMRGCAuk. The forum with all the people sharing...

https://connect.mayoclinic.org/comment/1156055/

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

Thank you for your comments. During my 13 months of prednisone I had absolutely no negative...

https://connect.mayoclinic.org/comment/1154299/

Discussion: Pain ever goes away on its own?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2024

Is there anyone that is newly off of prednisone (within the last month) that has experienced...

https://connect.mayoclinic.org/comment/1153744/

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 7, 2024

I don’t want to play the PMR/prednisone taper game ever again! It was too stressful and...

https://connect.mayoclinic.org/comment/1152343/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2024

Thanks for your response. I have been on prednisone for 3 years. My last dose was...

https://connect.mayoclinic.org/comment/1150877/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...

https://connect.mayoclinic.org/comment/1150737/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

A prednisone flare and a PMR flare are almost identical in pain. I generally think most...

https://connect.mayoclinic.org/comment/1148662/

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2024

Thank-you for saying that. I think I'm doing "reasonably well" but I wouldn't go so far...

https://connect.mayoclinic.org/comment/1147500/

Discussion: PMR and Fatigue. Interesting study

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2024

Let me clarify. Once totally off the prednisone, there can be some pain. . At that...

https://connect.mayoclinic.org/comment/1147399/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2024

No meant unable. Not preaching here but only explaining. Generally after about 2 weeks your body...

https://connect.mayoclinic.org/comment/1146659/

Discussion: What is the root cause of PMR? Is it contagious?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 24, 2024

I have the same issues with the shoulders . Things were fair at 20 mg but...

https://connect.mayoclinic.org/comment/1146547/

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 24, 2024

Sorry to hear the fingers are involved. Hoping you get some answers at your follow up...

https://connect.mayoclinic.org/comment/1146457/

Discussion: PMR to RA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 24, 2024

@carlarosie Hello and welcome to this PMR forum! There are some very knowledgeable people here that...

https://connect.mayoclinic.org/comment/1146405/

Discussion: Actemra vs Kevzara success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 24, 2024

No real insight except to say Actemra works well for me. I'm glad you were able...

https://connect.mayoclinic.org/comment/1144577/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

Was your prescription written 5 mg of Prednisone 2-3 times per day as needed? Is your...

https://connect.mayoclinic.org/comment/1143766/

Discussion: PMR and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

Supposedly that was what happened before the Prednisone era of treating PMR. I pity the people...

https://connect.mayoclinic.org/comment/1142015/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

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