Polymyalgia Rheumatica (PMR): Discussions | Page 134

There was an "administrative process" for me to get approved for Actemra. My doctor did the...

https://connect.mayoclinic.org/comment/1271440/

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1 4:46am

I left that forum because of conflicts. They weren't interested in Actemra and said it wasn't...

https://connect.mayoclinic.org/comment/1280137/

Discussion: Exercise is so important

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12 12:23pm

I have idiopathic peripheral neuropathy which started about a year after PMR was diagnosed. I started...

https://connect.mayoclinic.org/comment/1280389/

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12 6:16pm

I was diagnosed with PMR and GCA in late June of 2024. I started on 60...

https://connect.mayoclinic.org/comment/1280997/

Discussion: Taking Prednisone for PMR &!actemra to wean off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13 1:37pm

My dizziness happened on high doses of prednisone and recurred when my prednisone dose was less...

https://connect.mayoclinic.org/comment/1281613/

Discussion: Prednisone and vertigo

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14 10:50am

Hopefully the Actemra will start helping you soon and you'll be able to start tapering the...

https://connect.mayoclinic.org/comment/1283288/

Discussion: Taking prednisone before sleep.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 11:31am

Thank you very much for sharing your experience and insights. It seems that symptoms and duration...

https://connect.mayoclinic.org/comment/1283843/

Discussion: PMR relapse- anyone mild and quick recovery?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17 9:10am

I started prednisone at 10mg. My tapering schedule is reducing 1mg every 4 weeks. From what...

https://connect.mayoclinic.org/comment/1284045/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17 12:47pm

Tapering off of prednisone and managing the PMR symptoms can be challenging. Keeping a daily log...

https://connect.mayoclinic.org/comment/1304504/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 7:54am

I began taking Prednisone in July 2024 for PMR/GCA. 60 mg. for 6 weeks. My voice...

https://connect.mayoclinic.org/comment/1304571/

Discussion: PMR with hand/wrist pain and swollen veins?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 9:20am

That sounds like poor options they are giving you for Rheumatologist appts but I know there...

https://connect.mayoclinic.org/comment/1302874/

Discussion: Do we actually “recover”?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 8:30pm

After 3-4 months on Actemra, my prednisone taper came to an abrupt halt when I reached...

https://connect.mayoclinic.org/comment/1308018/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19 5:13pm

When I was first diagnosed (July 2024), I had severe pain from my hips to my...

https://connect.mayoclinic.org/comment/1298041/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6 9:17am

Welcome @tyman23, Sorry to hear you've joined the PMR club but happy you have found Connect....

https://connect.mayoclinic.org/comment/1319172/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 7:59am

Diagnosed three years ago, and have tapered to a very low dose of prednisone. Although shoulder...

https://connect.mayoclinic.org/comment/1319098/

Discussion: Knee pain and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:10am

Very helpful. Thank you John. I may go the lazy way and try first the one...

https://connect.mayoclinic.org/comment/1208855/

Discussion: Has anyone tried Sofresco immunity ginger shots?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 8:19am

"Therapy is based on empiric experiences because few randomized clinical trials are available to guide treatment...

https://connect.mayoclinic.org/comment/1327841/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15 2:49pm

I have seen lots of posts where MTX did not work. Its an RA drug being...

https://connect.mayoclinic.org/comment/1162613/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2024

It's amazing that you tapered that fast. I don't see an endocrinologist, so I don't know...

https://connect.mayoclinic.org/comment/1160496/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

Addendum: The following excerpt are the words of a true expert on the subject. She told...

https://connect.mayoclinic.org/comment/1159317/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

Polymyalgia Rheumatica (PMR) Support Group