Polymyalgia Rheumatica (PMR) Support Group

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@tedmbrady My husband developed PMR 5/2023 and then GCA (giant cell arteritis) in 2/2024. It's been...

https://connect.mayoclinic.org/comment/1056983/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

I agree, trust your rheumatologist, but be honest with him/her. You should not have to hurt...

https://connect.mayoclinic.org/comment/1054090/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2024

Hi all. I am off prednisone now for 15 weeks and off Kevzara since mid February....

https://connect.mayoclinic.org/comment/1052195/

Discussion: Has anyone fought Polymyalgia without prednisone successfully?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

I thought of one more thing - search around this site for 'split dose". -- that...

https://connect.mayoclinic.org/comment/1049641/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2024

@dbyme Thanks for your perspective. I'm going to read this to my husband. He's scared to...

https://connect.mayoclinic.org/comment/1048971/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

Hello @joycj I had a flare up last September, 8 months into my PMR. I was...

https://connect.mayoclinic.org/comment/1048901/

Discussion: Anyone tapered down as directed, but increased back up on their own?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

I don't think you failed and don't let the flare crush you! I understand your feeling...

https://connect.mayoclinic.org/comment/1048359/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

But for biologics - a Series of them in my case - my quality of life...

https://connect.mayoclinic.org/comment/1047498/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

Welcome @tinmanneedsoil, Sorry to hear you joined the PMR club. It can be tricky tapering down...

https://connect.mayoclinic.org/comment/1047209/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

I'm not sure how many people are interested or how many people who have GCA are...

https://connect.mayoclinic.org/comment/1046480/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2024

Hi, I was 58 and it developed within 48hrs of my 2nd Pfizer COVID vaccine. I...

https://connect.mayoclinic.org/comment/1045525/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

Love to hear that you have gotten off of Predisone. Sounds like Kevzara helped with your...

https://connect.mayoclinic.org/comment/1044978/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

I had a hip replacement 4 years ago but I had bone on bone. It's great...

https://connect.mayoclinic.org/comment/1043609/

Discussion: Is this a possible relapse to PMR or something entirely different??

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2024

Yeah for you! I was also able to taper down at about the same rate. I...

https://connect.mayoclinic.org/comment/1042541/

Discussion: Finally coming to an end!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2024

It has taken me eight months to taper from 15 mg to 11 mg. I'm now...

https://connect.mayoclinic.org/comment/1041671/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

I didn't know I had it the first time either. I sure did the second time....

https://connect.mayoclinic.org/comment/1037979/

Discussion: Thrush

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2024

To dj13: Your timeline, dosages, and remaining symptoms closely mimic my own experiences, including playing soccer...

https://connect.mayoclinic.org/comment/1036009/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18, 2024

Hello! I've been gaining so much information and insight from this group and I'm so grateful....

https://connect.mayoclinic.org/comment/1033638/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2024

Hello @bren0718 do you live in USA ? I ask because you us the term family...

https://connect.mayoclinic.org/comment/1030933/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2024

Were you on Actemra for GCA? Did Actemra help with getting GCA into remission? I was...

https://connect.mayoclinic.org/comment/1030929/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2024

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