Polymyalgia Rheumatica (PMR): Discussions | Page 133

Great to hear your husband is doing better @joycj. It really helps to have a special...

https://connect.mayoclinic.org/comment/1214743/

Discussion: Keep encouraged, tapering second time is working

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17 7:38am

I have multiple autoimmune disorders. My first Prednisone dose was more than 30 years ago. I...

https://connect.mayoclinic.org/comment/1309018/

Discussion: How I tapered off Prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 9:30pm

I had my most energy in the morning. I had a terrible time sleeping. My arms...

https://connect.mayoclinic.org/comment/1301192/

Discussion: When is your worse time of day with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10 1:41pm

I was diagnosed with PMR and GCA in March 2024. Pain from the PMR was debilitating,...

https://connect.mayoclinic.org/comment/1300542/

Discussion: Tapering off prednisone with GCA temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 9 12:56pm

Thank you very much. ☺️For me every time I tried to taper below 4mg of prednisone...

https://connect.mayoclinic.org/comment/1302709/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 4:18pm

Hello, I’m 62 and was diagnosed in 2021. I’ve been on prednisone since and was started...

https://connect.mayoclinic.org/comment/1312511/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 11:38am

"I also think there was a Connect member ( maybe there are many others here?) who...

https://connect.mayoclinic.org/comment/1209436/

Discussion: Comprehensive Overview Of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 9:23pm

A biologic like Kevzara introduces another variable into the tapering process. When I tried another biologic...

https://connect.mayoclinic.org/comment/1308288/

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 7:09am

I suspect many people can taper by 1 mg per month. That is what the guidelines...

https://connect.mayoclinic.org/comment/1308271/

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 6:46am

I'm assuming your "off label" use of Actemra is for PMR since it isn't FDA approved...

https://connect.mayoclinic.org/comment/1312929/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 9:39pm

Viruses evolve. For flu and Covid, they have to keep updating the vaccines to deal with...

https://connect.mayoclinic.org/comment/1314949/

Discussion: When in PMR remission: What's your experience with covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 1:13pm

I have PMR, with intense pain. I’m on 15mg of prednisone. I was on 30mg and...

https://connect.mayoclinic.org/comment/1315138/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 4:32pm

That is another story. I took the plunge. I stopped Prednisone but did a "countdown taper."...

https://connect.mayoclinic.org/comment/1320239/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 12:31pm

Did you experience any symptoms of adrenal insufficiency? Adrenal suppression is probably inevitable with any dose...

https://connect.mayoclinic.org/comment/1322423/

Discussion: PMR (ending prednisone) and Osteoarthritis flare up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7 3:56pm

"This is hard work for patients because for most of that time, you have to run...

https://connect.mayoclinic.org/comment/1320699/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 8:28am

Dear Deb, I'm truly sorry to hear about the challenges you're facing with polymyalgia rheumatica (PMR),...

https://connect.mayoclinic.org/comment/1274442/

Discussion: PMR and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4 7:36pm

Everyone is so different that question would be hard to answer. Severity of the disease, Length...

https://connect.mayoclinic.org/comment/1271692/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1 10:58am

Hi @murphy2370, It's good to hear that your PMR symptoms are gone. You mentioned you haven't...

https://connect.mayoclinic.org/comment/1266689/

Discussion: PMR symptoms are gone. Sharing what worked for me .

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25 3:13pm

For what it's worth, I've never felt much from the Actemra. I know it's working, because...

https://connect.mayoclinic.org/comment/1271096/

Discussion: Actemra sef Injection

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31 2:52pm

There was an "administrative process" for me to get approved for Actemra. My doctor did the...

https://connect.mayoclinic.org/comment/1271440/

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1 4:46am

Polymyalgia Rheumatica (PMR) Support Group