Polymyalgia Rheumatica (PMR) Support Group

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There is an alternative to Prednisone now! It's Kevzara. Patients are initially put on Prednisone and...

https://connect.mayoclinic.org/comment/1170468/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 9, 2024

Long term prednisone use is defined as anything more than 3 - 4 weeks, anywhere I've...

https://connect.mayoclinic.org/comment/1169703/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

I think beta blockers like metoprolol mostly block the effect of adrenaline rather than decrease the...

https://connect.mayoclinic.org/comment/1167977/

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 4, 2024

I'm not sure where the 10% rule comes from but I can never find any research...

https://connect.mayoclinic.org/comment/1220674/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24 1:39pm

I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...

https://connect.mayoclinic.org/comment/1221155/

Discussion: After remission ... has anyone discontinued Actemra or Kevzara?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 8:54am

I'm on prednisone (10 mg) and Actemra for GCA and PMR. In a few days I'll...

https://connect.mayoclinic.org/comment/1223051/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 10:50am

Been on prednisone for PMR for over 4 years now, tapered down to 8 mg daily....

https://connect.mayoclinic.org/comment/1211038/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 6:30am

It would be safe to say that my cumulative dose over my 13 years of PMR...

https://connect.mayoclinic.org/comment/1211163/

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 8:55am

HI There - you wrote : " I was started on 65mg of prednisone, which obliterated...

https://connect.mayoclinic.org/comment/1214978/

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17 1:04pm

Hi @neztrop, I was also 63 when I was diagnosed with PMR and my plan to...

https://connect.mayoclinic.org/comment/1217087/

Discussion: PMR and Work

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 6:37am

I started Kevzara in November 2023. I was able to taper off Prednisone in about 3-4...

https://connect.mayoclinic.org/comment/1222209/

Discussion: Kevzara and elevated liver enzymes ALT AST

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26 11:59am

If you have PMR it can be problematic stopping treatment suddenly. Your eye doctor is concerned...

https://connect.mayoclinic.org/comment/1225067/

Discussion: Prednisone duration

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 10:44pm

I am on my second big trip since getting PMR in March 2024. It took doctors...

https://connect.mayoclinic.org/comment/1222979/

Discussion: Traveling with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 9:52am

Other than an IL-6 level being interesting to know, I haven't had that level checked. I...

https://connect.mayoclinic.org/comment/1226858/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 10:19am

@anncoco57, Thanks for sharing your experience with Reiki with your PMR. There are a few mentions...

https://connect.mayoclinic.org/comment/1206507/

Discussion: Reiki

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8 7:34am

Sometimes it doesn't matter how slowly you taper. If your adrenals don't want to produce more...

https://connect.mayoclinic.org/comment/1206228/

Discussion: Titration down in steroids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 4:08pm

Hi, So you know, GC’s (prednisone) are the frontline treatment for GCA. MTX is a GC...

https://connect.mayoclinic.org/comment/1210358/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 7:12am

You might find it helpful to scan through the list of discussions on tapering off prednisone...

https://connect.mayoclinic.org/comment/1240110/

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 3:13pm

Hi @gee18, I'm wondering if a temporal artery biopsy confirmed your GCA. If so, then I...

https://connect.mayoclinic.org/comment/979854/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

I was diagnosed with GCA/PMR in October 2023. Put on 60 to 40 mg prednisone for...

https://connect.mayoclinic.org/comment/1210397/

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 7:56am

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