Polymyalgia Rheumatica (PMR) Support Group

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I too had semi “normal” blood results. I think one factor was out of wack, but...

https://connect.mayoclinic.org/comment/321756/

Discussion: PMR initial diagnosis: Can there be an underlying disease?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2020

@sharenb, That is a great question about giant cell arteritus (GCA). In my followup exams with...

https://connect.mayoclinic.org/comment/321744/

Discussion: PMR initial diagnosis: Can there be an underlying disease?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2020

Just reading that many people are having trouble getting below 3-4 MG of prednisone (you'd think...

https://connect.mayoclinic.org/comment/137981/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2019

@jhinia - I agree with Charann about not having another biopsy. I have permanent numbness from...

https://connect.mayoclinic.org/comment/197291/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2019

@jhinia - Hi from Tinkerbell. I finished my taper for GCA last October. I had a...

https://connect.mayoclinic.org/comment/197286/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2019

Good to hear from you @noahs. Sounds like you have a good plan for tapering off...

https://connect.mayoclinic.org/comment/137944/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7, 2019

I had been taking 1,000mg of curcumin/turmeric each day to see if it helped with PMR...

https://connect.mayoclinic.org/comment/108805/

Discussion: Does anyone use curcumin (Turmeric) to address autoimmune diseases?

Support Group: Autoimmune Diseases

Posted: May 4, 2019

I know everyone is different but I got to1mg in 18 months. FYIO: I was down...

https://connect.mayoclinic.org/comment/138067/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2019

@dreamer38 I, too, have bumped my prednisone up and down. I’m tapering down from 15mgs. My...

https://connect.mayoclinic.org/comment/138066/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2019

Hi kdmorris, is the Celebrex that you are taking in place of Prednisone? I’m trying to...

https://connect.mayoclinic.org/comment/138064/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2019

Hi Linda, I never had the burst of pain you are describing. I will tell you,...

https://connect.mayoclinic.org/comment/138061/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2019

Hi @dreamer38, are you able to try splitting the dosage so that you are taking some...

https://connect.mayoclinic.org/comment/138049/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2019

Thanks so much for your quick reply. My rheumatologist did discuss tapering off prednisone to a...

https://connect.mayoclinic.org/comment/138043/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2019

@suziropiequet I’m glad you asked about a prednisone discussion group. That’s exactly what I was going...

https://connect.mayoclinic.org/comment/268537/

Discussion: Prednisone support group?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2019

@sharync, I think it has to do with controlling the inflammation and each of us are...

https://connect.mayoclinic.org/comment/138017/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2019

@susie1950 there's no golden rule for tapering down on prednisone. I'm sure they are trying to...

https://connect.mayoclinic.org/comment/137734/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 29, 2018

@captainkenny - I feel the same way that I was lucky to be diagnosed after one...

https://connect.mayoclinic.org/comment/197157/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2018

Hi @gemmax, my first occurrence of PMR was back in 2007. A Mayo rheumatologist diagnosed my...

https://connect.mayoclinic.org/comment/180048/

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2018

I would recommend that you not start on any Prednisone now. My CT scan did not...

https://connect.mayoclinic.org/comment/197099/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2018

Hello @barabarene -- I'm glad you are feeling better. Part of the battle with PMR is...

https://connect.mayoclinic.org/comment/180036/

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2018

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