Polymyalgia Rheumatica (PMR) Support Group

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Yes, I ended six weeks ago (July 6). PMR had started in mid-May of the previous...

https://connect.mayoclinic.org/comment/1126711/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2024

@70infl, I'm with @megz on going from 5mg to 2.5mg can be too big of a...

https://connect.mayoclinic.org/comment/1126363/

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2024

I was diagnosed with PMR in May, 2023 and began with 25 mg of prednisone. My...

https://connect.mayoclinic.org/comment/1125623/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2024

My Rheumatologist recommended either Fosamax or a Reclast (zoledronic acid) infusion when I was diagnosed in...

https://connect.mayoclinic.org/comment/1124789/

Discussion: Fosamax for bone density while on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 16, 2024

Karo, I can relate re: being treated like a senile old lady. One ophthamologist I saw...

https://connect.mayoclinic.org/comment/1124270/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2024

The following link is a good place to start. https://www.pmrandil6.com/il-6-and-pmr/ --------------------------------------------- IL-6 is a cytokine (protein...

https://connect.mayoclinic.org/comment/1122486/

Discussion: Flareups, Prednisone, Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2024

Hi G, I was diagnosed with PMR in 2016 after knee replacement and possible GCA. Was...

https://connect.mayoclinic.org/comment/1121688/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2024

I'm sorry you've started down this slippery slope too. My adjunct remedies to Prednisone are Yoga,...

https://connect.mayoclinic.org/comment/1120991/

Discussion: Homeopathic-Naturopathic remedies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2024

I sympathize on the fatigue. I've had a lot of that, too. But I turned 72...

https://connect.mayoclinic.org/comment/1120164/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2024

To DadCue, When being treated for my asthma the doctors would normally give me an injection...

https://connect.mayoclinic.org/comment/1119259/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 7, 2024

Yes, I have noticed this side effect, which has only gotten worse as I taper. I...

https://connect.mayoclinic.org/comment/1118956/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2024

"Being that you dealt with PMR for a longer period, is it debilitating over time or...

https://connect.mayoclinic.org/comment/1118476/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2024

Frustration again!! Rheumatologist finally got back to me after I sent a second message today. She...

https://connect.mayoclinic.org/comment/1118212/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2024

Yes same thing happened to me, although I understand it is not a common side effect....

https://connect.mayoclinic.org/comment/1116996/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 3, 2024

I stopped LDN for two weeks to see if it made a difference. It didn't seem...

https://connect.mayoclinic.org/comment/1116790/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 3, 2024

My rheumatologist prescribed Methotrexate as an addition to the prednisone because of the achy sore hands...

https://connect.mayoclinic.org/comment/1116527/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

I am fairly confident my PMR was triggered by my last Covid booster. I received it...

https://connect.mayoclinic.org/comment/1116043/

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2024

There are risks to taking Actemra but I hope it works well for you too. Just...

https://connect.mayoclinic.org/comment/1112257/

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

Thank you for your kind words! My hubby and I do have are “off” days but...

https://connect.mayoclinic.org/comment/1112193/

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

Good morning prednisone takers. I just began taking my prescription last evening with dinner around 6:00....

https://connect.mayoclinic.org/comment/1111642/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2024

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