Polymyalgia Rheumatica (PMR): Discussions | Page 126

"It sounds like you have a keeper for a rheumatologist. That is half the battle. I...

https://connect.mayoclinic.org/comment/1175222/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024

Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a...

https://connect.mayoclinic.org/comment/1174720/

Discussion: Length of PMR condition

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024

Kevzara is now an option for me since it was FDA approved for PMR in February...

https://connect.mayoclinic.org/comment/1171767/

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2024

My blood tests are never consistent with showing PMR. This has been going on for 7...

https://connect.mayoclinic.org/comment/1171639/

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2024

There is an alternative to Prednisone now! It's Kevzara. Patients are initially put on Prednisone and...

https://connect.mayoclinic.org/comment/1170468/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 9, 2024

Long term prednisone use is defined as anything more than 3 - 4 weeks, anywhere I've...

https://connect.mayoclinic.org/comment/1169703/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

I think beta blockers like metoprolol mostly block the effect of adrenaline rather than decrease the...

https://connect.mayoclinic.org/comment/1167977/

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 4, 2024

I'm not sure where the 10% rule comes from but I can never find any research...

https://connect.mayoclinic.org/comment/1220674/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24 1:39pm

I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...

https://connect.mayoclinic.org/comment/1221155/

Discussion: After remission ... has anyone discontinued Actemra or Kevzara?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 8:54am

I'm on prednisone (10 mg) and Actemra for GCA and PMR. In a few days I'll...

https://connect.mayoclinic.org/comment/1223051/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 10:50am

Been on prednisone for PMR for over 4 years now, tapered down to 8 mg daily....

https://connect.mayoclinic.org/comment/1211038/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 6:30am

It would be safe to say that my cumulative dose over my 13 years of PMR...

https://connect.mayoclinic.org/comment/1211163/

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 8:55am

HI There - you wrote : " I was started on 65mg of prednisone, which obliterated...

https://connect.mayoclinic.org/comment/1214978/

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17 1:04pm

Hi @neztrop, I was also 63 when I was diagnosed with PMR and my plan to...

https://connect.mayoclinic.org/comment/1217087/

Discussion: PMR and Work

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 6:37am

I started Kevzara in November 2023. I was able to taper off Prednisone in about 3-4...

https://connect.mayoclinic.org/comment/1222209/

Discussion: Kevzara and elevated liver enzymes ALT AST

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26 11:59am

If you have PMR it can be problematic stopping treatment suddenly. Your eye doctor is concerned...

https://connect.mayoclinic.org/comment/1225067/

Discussion: Prednisone duration

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 10:44pm

I am on my second big trip since getting PMR in March 2024. It took doctors...

https://connect.mayoclinic.org/comment/1222979/

Discussion: Traveling with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 9:52am

Full stop and I stayed on 3 mg until my endocrinologist determined that "it might be...

https://connect.mayoclinic.org/comment/1143793/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

Other than an IL-6 level being interesting to know, I haven't had that level checked. I...

https://connect.mayoclinic.org/comment/1226858/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 10:19am

@anncoco57, Thanks for sharing your experience with Reiki with your PMR. There are a few mentions...

https://connect.mayoclinic.org/comment/1206507/

Discussion: Reiki

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8 7:34am

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