Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

4,023 total results

Comments (3,809)

Hi @vjs, When it comes to PMR I don't think there is a one size fits...

https://connect.mayoclinic.org/comment/881557/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2023

I can definitely relate to the stress of seeing doctors, especially new providers. The cumulative effect...

https://connect.mayoclinic.org/comment/879078/

Discussion: Breakthrough Pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2023

Hi @lawhoeburg, Connect was really helpful for me also when I was tapering off of prednisone...

https://connect.mayoclinic.org/comment/876985/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 12, 2023

Hello @richardab @redboat @tls4 @bfh3 we seem to be in the newly diagnosed group (? Early...

https://connect.mayoclinic.org/comment/874495/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

That’s very interesting, I did not know that. Maybe they are missing a lot of diagnosis....

https://connect.mayoclinic.org/comment/873894/

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Hi @sirmac, I'm still not sure how much prednisone you started taking when diagnosed with PMR....

https://connect.mayoclinic.org/comment/872028/

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

Diagnosed Feb 3 with PMR/GCA. started on 40 mg prednisone.. tapering slowly tomorrows going to 25!!...

https://connect.mayoclinic.org/comment/872000/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

I am 76, female in excellent health. I thought I was doing all the “right things”...

https://connect.mayoclinic.org/comment/870846/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2023

Wanted to get back to you after my most recent Dr. Visit re glucose levels (mine...

https://connect.mayoclinic.org/comment/870826/

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2023

Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes...

https://connect.mayoclinic.org/comment/870584/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Hi, I am very new to PMR and have only been taking Prednisone for 3 weeks....

https://connect.mayoclinic.org/comment/869890/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2023

I find your post very interesting since I was first diagnosed with PMR and then diagnosis...

https://connect.mayoclinic.org/comment/869404/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2023

@alissahe --- "12 years on prednisone! Wow! How’s your bone density? What side effects did you...

https://connect.mayoclinic.org/comment/869085/

Discussion: Divided dose or all at once?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2023

@johnbishop maybe title of this thread should be changed to "trials" in general - 2023 Are...

https://connect.mayoclinic.org/comment/868882/

Discussion: Polymyalgia Rheumatica (PMR) - Clinical Trials

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Short version of a very long story: I took prednisone for more than 12 years for...

https://connect.mayoclinic.org/comment/868834/

Discussion: Divided dose or all at once?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Thanks for weighing in. I too have been loosing weight which I definitely don’t need to...

https://connect.mayoclinic.org/comment/868437/

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

Hi @sirmac, I'll chime in with @johnbishop below that the dosage of prednisone seems low for...

https://connect.mayoclinic.org/comment/868202/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2023

I agree that massage and/or acupuncture are not the solution(s). I use prednisone and it is...

https://connect.mayoclinic.org/comment/866220/

Discussion: Acupuncture and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023

Thanks! That's good to hear. Well, we have an appointment with my dad's rheumatologist on Monday....

https://connect.mayoclinic.org/comment/862118/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2023

It might be a good time to suggest to your doctor that having your cortisol level...

https://connect.mayoclinic.org/comment/860731/

Discussion: i have come off steroids after 11 years, am finding it very difficult

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

Autoimmune Diseases

Follow

16323

35 minutes ago

Follow

11898

1 hour ago

Follow

15530

2 hours ago

Follow

3040

8 hours ago

Visiting Mayo Clinic

Follow

5699

12 hours ago