Polymyalgia Rheumatica (PMR) Support Group

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Here are a few articles discussing the reasoning for tapering schedules. "How to taper GC: The...

https://connect.mayoclinic.org/comment/896625/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

Hello John and thank you for your welcome! No I have not been diagnosed with Fibromyalgia,...

https://connect.mayoclinic.org/comment/895775/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

Good Morning Misery3, So glad you found this support group. It is filled with wonderful people...

https://connect.mayoclinic.org/comment/892049/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2023

There are unfortunate problems that surface when people get into the neighborhood of 5 mg of...

https://connect.mayoclinic.org/comment/891062/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

I don't think normal is coming back for me. I had started with 15mg of Prednisone...

https://connect.mayoclinic.org/comment/890982/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Hi there- There’s a lot of great feedback and shared experiences about this here: https://connect.mayoclinic.org/discussion/pmr-dosages/ if...

https://connect.mayoclinic.org/comment/889354/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

I was diagnosed back in March with PMR put on prednisone been tapering down from 20...

https://connect.mayoclinic.org/comment/889341/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

@paulagcl and. @dadcue -- Please look at the slides in PMRandIl6.com - https://www.pmrandil6.com/resources/. scroll down to...

https://connect.mayoclinic.org/comment/889124/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

@emaureen, I think we are all a little impatient when trying to taper off of prednisone....

https://connect.mayoclinic.org/comment/887687/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2023

I think you would have much to contribute to a PMR forum. I don't know where...

https://connect.mayoclinic.org/comment/886677/

Discussion: Question about PMR in addition to other autoimmune disorders?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

@vellen, I thought I would share a direct link to the discussion you found helpful so...

https://connect.mayoclinic.org/comment/884650/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2023

So far, I am unaware of any side effects of Actemra. I've been having weekly injections...

https://connect.mayoclinic.org/comment/882776/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

I have PMR /GCA started out at 40 mg prednisone and now at 20 mg. Was...

https://connect.mayoclinic.org/comment/881808/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2023

Hi @vjs, When it comes to PMR I don't think there is a one size fits...

https://connect.mayoclinic.org/comment/881557/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2023

I can definitely relate to the stress of seeing doctors, especially new providers. The cumulative effect...

https://connect.mayoclinic.org/comment/879078/

Discussion: Breakthrough Pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2023

Hi @lawhoeburg, Connect was really helpful for me also when I was tapering off of prednisone...

https://connect.mayoclinic.org/comment/876985/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 12, 2023

Hello @richardab @redboat @tls4 @bfh3 we seem to be in the newly diagnosed group (? Early...

https://connect.mayoclinic.org/comment/874495/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

That’s very interesting, I did not know that. Maybe they are missing a lot of diagnosis....

https://connect.mayoclinic.org/comment/873894/

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Hi @sirmac, I'm still not sure how much prednisone you started taking when diagnosed with PMR....

https://connect.mayoclinic.org/comment/872028/

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

Diagnosed Feb 3 with PMR/GCA. started on 40 mg prednisone.. tapering slowly tomorrows going to 25!!...

https://connect.mayoclinic.org/comment/872000/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

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