Polymyalgia Rheumatica (PMR) Support Group

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Kevzara (sarilumab) is FDA approved for PMR Actemra (tocilizumab) is FDA approved for GCA Both of...

https://connect.mayoclinic.org/comment/924479/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5, 2023

I have been unable to get below 17.5 mg of prednisone. I am scheduled to taper...

https://connect.mayoclinic.org/comment/921577/

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

Hi @chzuck, I've had two occurrences of PMR. Starting at 20mg prednisone for both. I always...

https://connect.mayoclinic.org/comment/917535/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 23, 2023

Welcome @mpm! My PMR has been in remission for 5+ years now but I do have...

https://connect.mayoclinic.org/comment/915977/

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20, 2023

Thanks for replying to me John , i was diagnosed with PMR in March and put...

https://connect.mayoclinic.org/comment/912855/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2023

PMR mostly affects people over 70. Stress aggravates it and from my experience, I see that...

https://connect.mayoclinic.org/comment/912254/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2023

Hi, Can just share my experience as over time I had quite serious prednisone side effects....

https://connect.mayoclinic.org/comment/911744/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

I think the 5.9 years as the "average" duration of PMR came from the following study....

https://connect.mayoclinic.org/comment/910917/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2023

It wasn’t until I went to NJH that my local doctors got in formation and started...

https://connect.mayoclinic.org/comment/909851/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2023

Latest blood work revealed that i have developed macrocytic anemia (high MCH). Probably explains the fatigue...

https://connect.mayoclinic.org/comment/908837/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 7, 2023

@vellen, My rheumatologist gave me tapering suggestions but never told me specific amounts or times to...

https://connect.mayoclinic.org/comment/908236/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

This would just be a couple of guesses. I'm currently doing monthly infusions of Actemra. The...

https://connect.mayoclinic.org/comment/908164/

Discussion: Sleeping 9-10 hours with tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

I had a similar situation due to PMR or "apparent" GCA. I was on 20 mg...

https://connect.mayoclinic.org/comment/908048/

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

Thanks for your reply! About a month ago I started having fleeting stabbing pains in my...

https://connect.mayoclinic.org/comment/906529/

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2023

Your symptoms do indicate PMR. Prednisone does work in most cases, though not all. PMR has...

https://connect.mayoclinic.org/comment/904766/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2023

Hi @adia, Sorry to hear you are struggling with the PMR and tapering. I've only used...

https://connect.mayoclinic.org/comment/903728/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Hi Charlotte, I too wanted instant relief and I didn’t get it. After a few days...

https://connect.mayoclinic.org/comment/903123/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 27, 2023

Hi @charlotte61, since you've been doing TaiChi you might want to check out Dr. Loren Fishman's...

https://connect.mayoclinic.org/comment/902654/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2023

Hi Charlotte, I am sorry that you have received this diagnosis but at least you now...

https://connect.mayoclinic.org/comment/902339/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2023

Glad you are with doctor. I am 3 years into it. No pain pill works. Been...

https://connect.mayoclinic.org/comment/901930/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2023

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