Polymyalgia Rheumatica (PMR) Support Group

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Comments (4,003)

Kevzara might be worth a try for "relapsing PMR" Kevzara won't work immediately so prednisone might...

https://connect.mayoclinic.org/comment/1067875/

Discussion: On a hamster wheel with PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

Hi @stevieb, I had symptoms of PMR and GCA about a year and a half before...

https://connect.mayoclinic.org/comment/1066091/

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2024

@dadcue That is very good to know about Actemra becoming more effective to help tapering after...

https://connect.mayoclinic.org/comment/1062796/

Discussion: Facial puffiness? PMR/GCA on Prednisone/Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2024

I'm happy you are digging into this topic. People have a tendency to hear what they...

https://connect.mayoclinic.org/comment/1062481/

Discussion: Clinical VS Instincts

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2024

@slf202mcinfo. I can trace the onset of PMR to the last in the series of Pfizer...

https://connect.mayoclinic.org/comment/1060689/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2, 2024

Until PMR was diagnosed, I had no problem tapering off prednisone … sometimes from 100 mg...

https://connect.mayoclinic.org/comment/1057723/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2024

Hi, I started taking LF a month ago with very good results, i.e., reduced shoulder and...

https://connect.mayoclinic.org/comment/1050280/

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13, 2024

Welcome @joycj, We husbands definitely need an encourager. Good for you for helping your husband with...

https://connect.mayoclinic.org/comment/1048075/

Discussion: Anyone tapered down as directed, but increased back up on their own?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9, 2024

@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...

https://connect.mayoclinic.org/comment/1047530/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

I was at age 54 PMR. Hips shoulders and buttocks pain. Prednisone 10 mg twice a...

https://connect.mayoclinic.org/comment/1047148/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 7, 2024

I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...

https://connect.mayoclinic.org/comment/1046504/

Discussion: Is it PMR (and/) or Osteoarthritis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2024

@dadcue Could you please confirm that the first time you were on Actemra you were doing...

https://connect.mayoclinic.org/comment/1045219/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

I am about to do my fourth injection in two days so I’m currently on 5...

https://connect.mayoclinic.org/comment/1041021/

Discussion: How long does it take for you to move without pain and stiffness in a.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2024

Hi @charlotte61 and @nancy53, don't be to scared about GCA, but be on the alert for...

https://connect.mayoclinic.org/comment/1038442/

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22, 2024

" I did have blood work yesterday when I called for the appointment and she said...

https://connect.mayoclinic.org/comment/1036309/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19, 2024

Hi, I am wondering what taper schedule you used with your prednisone once the LF started...

https://connect.mayoclinic.org/comment/1035997/

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18, 2024

That’s interesting that you started to feel better after adding the sulfasalazine back along with the...

https://connect.mayoclinic.org/comment/1035296/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

I had been on 5mg daily of prednisone for over 15 years for general arthritis. Last...

https://connect.mayoclinic.org/comment/1035277/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

I did a "prednisone burst" many times for other conditions unrelated to PMR. You are wise...

https://connect.mayoclinic.org/comment/1035194/

Discussion: How to go from a 7 day 50 mg prednisone to the previous 14 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...

https://connect.mayoclinic.org/comment/1032883/

Discussion: Genetic testing to determine drug suitability

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2024

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