Polymyalgia Rheumatica (PMR) Support Group

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Thank you for responding to my message. I too am finding that exercise and yoga are...

https://connect.mayoclinic.org/comment/696109/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2022

I also am struggling with tapering. I started in November when I was diagnosed at 10...

https://connect.mayoclinic.org/comment/694681/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2022

True on the ego and just wanting to be off prednisone. I was so excited when...

https://connect.mayoclinic.org/comment/694190/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

Hi @cckelly, You're right, most people with PMR do respond to prednisone pretty quickly with a...

https://connect.mayoclinic.org/comment/693880/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2022

Here's a paper describing a randomized control trial showing the effectiveness of Actemra (tocilizumab) against Giant...

https://connect.mayoclinic.org/comment/827099/

Discussion: Has anyone heard this news about Kevzara approved for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2023

I'm sorry to hear about your husband and the situation you had to deal with. I'm...

https://connect.mayoclinic.org/comment/826997/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2023

Hi, I'm just about where you are except a couple of months ago, I tapered down...

https://connect.mayoclinic.org/comment/822919/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2023

There’s some very helpful posts here on tapering off prednisone. You might find it helpful after...

https://connect.mayoclinic.org/comment/822078/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2023

Hi I wonder if you were on an adequate dose to start with if you still...

https://connect.mayoclinic.org/comment/818531/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

Sorry, I meant to reply to @christopherc I have a bit of experience treating other autoimmune...

https://connect.mayoclinic.org/comment/817121/

Discussion: Does prednisone do more than treat the symptoms of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2023

There are plenty of alternatives to taking prednisone for PMR. The trick is finding something that...

https://connect.mayoclinic.org/comment/816570/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24, 2023

Hello @gratyork, Welcome to Connect. My non medical vote would be that the taper is too...

https://connect.mayoclinic.org/comment/816500/

Discussion: Quadriceps, predinisone and alternatives

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24, 2023

It is so nice too hear a positive story about the medical care you have received....

https://connect.mayoclinic.org/comment/815651/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22, 2023

I have the exact same thing. Was on long term prednisone for autoimmune hemolytic anemia. Tappering...

https://connect.mayoclinic.org/comment/814518/

Discussion: Does anyone have poor circulation and cold feet? PMR or prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20, 2023

I was diagnosed with PMR in October 2020 and was put on 20 mg of Prednisone....

https://connect.mayoclinic.org/comment/813464/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2023

It is worrisome being on prednisone for long periods. I am at 26 months on prednisone...

https://connect.mayoclinic.org/comment/811694/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

Hi @redboat, Welcome to Connect. You might find the following discussion helpful: --- PMR Dosages and...

https://connect.mayoclinic.org/comment/809362/

Discussion: PMR questions about prednisone, surgery limitations, pain and more

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10, 2023

Welcome @sunflower97, I'm sorry to hear you are struggling with PMR and the treatment. There are...

https://connect.mayoclinic.org/comment/809294/

Discussion: Immune system boosters

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10, 2023

Hi @davidsonk, Welcome to Connect. Sorry I missed your first post in the COVID discussion and...

https://connect.mayoclinic.org/comment/806908/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

I was doing pretty well on 5 mg of prednisone a day tapering it down from...

https://connect.mayoclinic.org/comment/804874/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1, 2023

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