Polymyalgia Rheumatica (PMR) Support Group

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"Please go after your pains one at a time and don't assume they are inter-related. This...

https://connect.mayoclinic.org/comment/1082920/

Discussion: Has anyone experienced edema in their ankles and feet?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8, 2024

I didn't really feel any different for 3 months when I started Actemra injections every 2...

https://connect.mayoclinic.org/comment/1080699/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

Remember Kevzara is trying to control the PMR restart or flare caused by the taper of...

https://connect.mayoclinic.org/comment/1080674/

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

Your probably still on Prednisone? I didnt read through all the threads. My take is if...

https://connect.mayoclinic.org/comment/1078990/

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

Yes. I was originally at 60 mgs of Prednisone last September for possible GCA along with...

https://connect.mayoclinic.org/comment/1078930/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

Dadcue, interested in your thoughts with a true PMR flare. By true flare I mean you...

https://connect.mayoclinic.org/comment/1078580/

Discussion: Doctors' confusion over diagnosis: Questions they should ask

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2024

Same for Reactive Arthritis ... Pain was more confined to my lumbar spine but I also...

https://connect.mayoclinic.org/comment/1078472/

Discussion: Doctors' confusion over diagnosis: Questions they should ask

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2024

Many many people were not diagnosed early enough in the course of their disease. I see...

https://connect.mayoclinic.org/comment/1077892/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2024

I took DEX. for my PMR. My wife has GBM they prescribe dex for inflammation. Its...

https://connect.mayoclinic.org/comment/1077210/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2024

My husband is the one with PMR and GCA. Diagnosed with PMR May 2023, GCA Feb...

https://connect.mayoclinic.org/comment/1076671/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2024

My rheumatologist did a bit of a test before starting Actemra. I was asked to taper...

https://connect.mayoclinic.org/comment/1074490/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

@dadcue Wow!! You have been through it all!! That sounds awful! I will make sure that...

https://connect.mayoclinic.org/comment/1074383/

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

You are not alone with having trouble tapering off of prednisone. It can be difficult for...

https://connect.mayoclinic.org/comment/1074367/

Discussion: Where to go for comprehensive evaluation?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

I have been tapering at 1 per month from 10 in January, now at 5. I...

https://connect.mayoclinic.org/comment/1071517/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2024

The way I understand it is the following: Only after 10 mg do you need to...

https://connect.mayoclinic.org/comment/1070414/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

How long were you taking prednisone? Some people have resilient adrenals. My adrenals weren't so resilient...

https://connect.mayoclinic.org/comment/1070307/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

hello @virginiaj and @sherylp good morning --Virginia's plan is pretty much my routine as well ;...

https://connect.mayoclinic.org/comment/1069669/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2024

Hi @sherylp, Welcome to Connect. Sorry to hear you joined the PMR club. You asked a...

https://connect.mayoclinic.org/comment/1069240/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2024

I was on Prednisone for more than 12 years. I wasn't able to get much below...

https://connect.mayoclinic.org/comment/1068112/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2024

Hello @queensfaith8, I would like to add my welcome to Connect along with @dadcue and others....

https://connect.mayoclinic.org/comment/1067979/

Discussion: On a hamster wheel with PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

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