Polymyalgia Rheumatica (PMR) Support Group

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Trying to decrease your prednisone dose by 2.5 mg so soon after being diagnosed is worth...

https://connect.mayoclinic.org/comment/948873/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2023

Thanks Bradninchgirl! Coming down by 2.5 mg at a time was definitely too much for me....

https://connect.mayoclinic.org/comment/946554/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

I believe you will get better eventually. For me PmR came on fast and hard. It...

https://connect.mayoclinic.org/comment/945000/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2023

I am also waiting to start Kevzara if I can’t get tapered off of Predisone. I’ve...

https://connect.mayoclinic.org/comment/943071/

Discussion: PMR Flair up From a Virus?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

Welcome @mountainbikergirl, That's a good question but I'm not sure there is a clear answer. I...

https://connect.mayoclinic.org/comment/942930/

Discussion: How many of you are on your second flare-up?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

I am on Kevzara, too, starting in April, soon after I was diagnosed and started on...

https://connect.mayoclinic.org/comment/942720/

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

From my personal experience with PMR, no 6 day dose would get rid of it. First...

https://connect.mayoclinic.org/comment/940737/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

I was diagnosed with PMR in May and Dr started me on 20 mg of prednisone...

https://connect.mayoclinic.org/comment/937413/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 27, 2023

My last two attempts at tapering when below 5 mg ignited a swollen painful hands response....

https://connect.mayoclinic.org/comment/934148/

Discussion: Swollen hands, rash with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

Hello @edinnola, Welcome to Connect. I'm really sorry to hear that you've joined the PMR club....

https://connect.mayoclinic.org/comment/933847/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

Ugh! that is what I was afraid of, making it worse, and causing a longer time...

https://connect.mayoclinic.org/comment/932975/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2023

I had scalp tenderness, mild jaw pain, but no vision issues. I was already on prednisone...

https://connect.mayoclinic.org/comment/931582/

Discussion: Does GCA ever present with mild symptoms ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

wilmigtonemperor, after reading a lot of discussions on this site, it is evident that no two...

https://connect.mayoclinic.org/comment/931319/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

I don't blame your doctor for being skeptical. https://acrabstracts.org/abstract/glucocorticoid-use-and-adverse-events-in-patients-with-polymyalgia-rheumatica-in-a-contemporary-population-based-cohort/ This study was frequently cited on another...

https://connect.mayoclinic.org/comment/930761/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2023

Hi @jj8431, Welcome to Connect. Sorry to hear you are having the extreme sweating side effects...

https://connect.mayoclinic.org/comment/930398/

Discussion: Prednisone tapering and extreme sweating

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2023

Hi, Just to add to the confusion. When I was diagnosed in May 2023 I started...

https://connect.mayoclinic.org/comment/927507/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 10, 2023

I reluctantly got the high dose shingles vaccine two weeks ago. This was after developing PMR...

https://connect.mayoclinic.org/comment/927413/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 10, 2023

It took over 4 months to diagnose my PMR. I could barely walk. I was so...

https://connect.mayoclinic.org/comment/926258/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 8, 2023

Kevzara (sarilumab) is FDA approved for PMR Actemra (tocilizumab) is FDA approved for GCA Both of...

https://connect.mayoclinic.org/comment/924479/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5, 2023

I have been unable to get below 17.5 mg of prednisone. I am scheduled to taper...

https://connect.mayoclinic.org/comment/921577/

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

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