Polymyalgia Rheumatica (PMR) Support Group

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https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/uveitis#:~:text=Uveitis%20is%20inflammation%20inside%20your,healthy%20tissue%20in%20your%20eyes. My uveitis was always the autoimmune kind. It was rapid onset and recurred every year...

https://connect.mayoclinic.org/comment/1023604/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27, 2024

@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...

https://connect.mayoclinic.org/comment/1023124/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

O-M-G !! I just responded to a different conversation with this comment that i highlighted from...

https://connect.mayoclinic.org/comment/1023115/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

Congrats on getting off prednisone! It sounds like your adrenals are still trying to become fully...

https://connect.mayoclinic.org/comment/1022781/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

Hi @joan7, weaning off of prednisone and managing pain is a common topic in the PMR...

https://connect.mayoclinic.org/comment/1022492/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2024

Just so you know ... I was on prednisone for 12 years for PMR. Prednisone suppressed...

https://connect.mayoclinic.org/comment/1022322/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2024

Persistent headaches could point to GCA so talk to your Rheumy ASAP. In previous posts we've...

https://connect.mayoclinic.org/comment/1018647/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 19, 2024

Gastric problems are a known side effect of prednisone, with or without adrenal insufficiency. That's why...

https://connect.mayoclinic.org/comment/1018121/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2024

Whether it is prednisone withdrawal symptoms or PMR coming back really is hard to determine when...

https://connect.mayoclinic.org/comment/1016303/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2024

Hi there. According to my doctor it’s a 1-2 yr journey but I was lucky. I...

https://connect.mayoclinic.org/comment/1014046/

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11, 2024

I have the same problem. In the early 40s, I am now 78, I went to...

https://connect.mayoclinic.org/comment/1011167/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7, 2024

Don't worry about adrenal insufficiency too much. If your husband still needs prednisolone for PMR there...

https://connect.mayoclinic.org/comment/1010283/

Discussion: reducing prednisolone once you get down to 5mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5, 2024

I was on 60 mg/day of Prednisone due to very high levels of inflammation due to...

https://connect.mayoclinic.org/comment/1000819/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2024

PMR diagnosed late September, started prednisone 20, had to bump to 30, started tapering -5 every...

https://connect.mayoclinic.org/comment/999647/

Discussion: Is it PMR (and/) or Osteoarthritis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18, 2024

My inflammation markers have been normal since my first 15 mg dose of prednisone 16 months...

https://connect.mayoclinic.org/comment/996216/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

Getting PMR into remission is the goal. Just about everybody starts with the prednisone because, as...

https://connect.mayoclinic.org/comment/995835/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

I think a prednisone burst for RA is okay as long as you are able to...

https://connect.mayoclinic.org/comment/995637/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11, 2024

I have been on a monthly infusion of Actemra for about a year. I started with...

https://connect.mayoclinic.org/comment/995079/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 10, 2024

Hello @trimomlewis, Thanks for starting this discussion that I think may benefit a lot of folks...

https://connect.mayoclinic.org/comment/992947/

Discussion: Dry January

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7, 2024

I have just started Kevzara along with the methotrexate. It is a biologic which targets Il-...

https://connect.mayoclinic.org/comment/992891/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7, 2024

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