Polymyalgia Rheumatica (PMR) Support Group

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Not necessarily something you need to get use to, because everyone responds differently to treatment. I...

https://connect.mayoclinic.org/comment/1103032/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

I agree with Metz ... that is impressive. Prednisone withdrawal symptoms are caused by "insufficient cortisol."...

https://connect.mayoclinic.org/comment/1102714/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

Actemra (tocilizumab) allowed me to taper from 10 mg to 3 mg. PMR was well controlled...

https://connect.mayoclinic.org/comment/1102576/

Discussion: PMR - Transitionaing from prednisone to another form of treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I tapered from 30 mg daily all the way down to 2 or 3 daily this...

https://connect.mayoclinic.org/comment/1102441/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

My approach to Prednisone is 1) worth the side effects 2) taper at your own pace....

https://connect.mayoclinic.org/comment/1102431/

Discussion: How do I handle the ups and downs of PMR? So many questions.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I have been following Rheumatology webinars for Rheumatologists for the last 11 months trying to learn...

https://connect.mayoclinic.org/comment/1102398/

Discussion: Is it a good idea to change rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

The Methotrexate helped me initially. I was at 8 mg prednisone, couldn't go lower, and the...

https://connect.mayoclinic.org/comment/1102333/

Discussion: How do I handle the ups and downs of PMR? So many questions.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I was diagnosed with Polymyalgia in April 2023 and was prescribed 20mg of prednisone and slowly...

https://connect.mayoclinic.org/comment/1102133/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I agree with John keeping a log was very helpful when I recently had to deal...

https://connect.mayoclinic.org/comment/1101997/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I can tell you aren't in the USA so I don't really know how it works...

https://connect.mayoclinic.org/comment/1101995/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I ended up after 3 years type c. Recently on dexamethasone now on taper from that...

https://connect.mayoclinic.org/comment/1101489/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2024

It might be an adrenal problem rather than a problem with Actemra. I successfully tapered off...

https://connect.mayoclinic.org/comment/1099798/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

@jhinia Quick question. When you were tapering and went from 20 mg to 17.5 with issues,...

https://connect.mayoclinic.org/comment/1099199/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2024

I have finally reached zero prednisone starting today ( 20 weeks starting at 10 mg )...

https://connect.mayoclinic.org/comment/1098676/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2024

Six years has been long and slow. Good luck with whatever approach you choose. There is...

https://connect.mayoclinic.org/comment/1097024/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

I continue to taper from a high of 30 last October. In January, at 9, my...

https://connect.mayoclinic.org/comment/1096762/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

Why will insurance be an obstacle for Kevzara? Other than Kevzara, I don't know of any...

https://connect.mayoclinic.org/comment/1096745/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

Discomfort is not the word. Tapering from 7.5 to 5 mgs Prednisone caused me to have...

https://connect.mayoclinic.org/comment/1095416/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2024

Well my goodness I can totally relate to your situation. I'm very new at this and...

https://connect.mayoclinic.org/comment/1095337/

Discussion: PMR or PREDNISONE

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2024

I hope you tapered slowly, your adrenal glands become dependent on Prednisone for cortisol production. It's...

https://connect.mayoclinic.org/comment/1094377/

Discussion: treatment of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 26, 2024

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