Polymyalgia Rheumatica (PMR) Support Group

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Comments (4,005)

Don't get too discouraged. I was on Prednisone for 12 years before learning about Prednisone induced...

https://connect.mayoclinic.org/comment/1320385/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 4:20pm

"My fear is always GCA and did have some symptoms and a biopsy during my 3rd...

https://connect.mayoclinic.org/comment/1320655/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 7:24am

It seems that 3 mg or less is the magic dose to allow for adrenal recovery....

https://connect.mayoclinic.org/comment/1320809/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 10:46am

I can relate to the original comment. I was diagnosed with PMR a little over two...

https://connect.mayoclinic.org/comment/1320251/

Discussion: After "recovering" from PMR, still decreased strength/stamina

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 12:51pm

What are you doing to tackle the root cause of your PMR? Prednisone is not a...

https://connect.mayoclinic.org/comment/1319110/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:38am

Yes, everyone is different. My rheumatologist started me at 10 mg, which seemed low and it...

https://connect.mayoclinic.org/comment/1244323/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24 7:59am

I have had PMR for 2 years. Down now to 6 mg of prednisone, tapering.05 very...

https://connect.mayoclinic.org/comment/1329096/

Discussion: Ozempic for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17 11:13am

Tapering off prednisone, 7.5mg this week. Also taking methotrexate. Torso stiffness an some pain. Not sure...

https://connect.mayoclinic.org/comment/1314926/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 12:48pm

I can only tell you from my own experience. Doctors say not to taper if you...

https://connect.mayoclinic.org/comment/1315450/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 7:01am

I am currently taking 15 mg MT once per week starting 4/1/25 with folate once per...

https://connect.mayoclinic.org/comment/1315552/

Discussion: Anyone having luck while taking methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 9:12am

I was diagnosed with GCA in March 2025 and started 60 mg prednisone for one month...

https://connect.mayoclinic.org/comment/1318157/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 7:33pm

His ego. When I told him that the Mayo clinic plus 4 other respected enities recommend...

https://connect.mayoclinic.org/comment/1317819/

Discussion: Shortness of breath ..dyspenia..while on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 9:41am

Sitting at 3mg prednisone. Yes, I am feeling achy in the morning. Is this low grade...

https://connect.mayoclinic.org/comment/1323476/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 9 8:37am

I had some back-up assistance from Actemra when I went from 3 mg to zero in...

https://connect.mayoclinic.org/comment/1282475/

Discussion: taper decision - stay at 1MG or keep going lower

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 15 11:37am

Generally speaking you need to give any biologic 3 months to see if it works. The...

https://connect.mayoclinic.org/comment/1329997/

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18 2:25pm

Thank you so much for your input. Both my primary care doctor and rheumatologist seem to...

https://connect.mayoclinic.org/comment/1332745/

Discussion: Recently Diagnosed PMR Disease Progression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22 12:35pm

This is the reason I am trying my best to avoid prednisone. My father had PMR...he...

https://connect.mayoclinic.org/comment/1159459/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

I had some lingering pain but the pain could be explained and it wasn't caused by...

https://connect.mayoclinic.org/comment/1159433/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

I think I need to slow down the tapering. I am so anxious to get off...

https://connect.mayoclinic.org/comment/1158436/

Discussion: Covid and Flu jabs all done

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 17, 2024

I am so sorry that is so discouraging. The dead slow tapering plan is what I’ve...

https://connect.mayoclinic.org/comment/1151413/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2024

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