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Pancreatic Cancer Support Group

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Discussion
Which questions should I ask my surgeon? (I think Whipple is likely.)
Hello and thanks. I had my 8th (of 8) Folfirinox infusions last week and will soon meet with my surgeon. I have no idea what...
Support Group: Pancreatic Cancer
Last active: Aug 30, 2023
Discussion
Is this monitoring regimen too “hands off?”
Diagnosed with pancreatic adenocarsinoma in 2023 after acknowledging that coffee colored urine and yellow skin were not normal. Had Whipple November 2023 to remove small...
Support Group: Pancreatic Cancer
Last active: Jul 27, 2025
Discussion
CA19-9 going up and back pain at night - recurrence?
I was diagnosed with pancreatic cancer in July 2022 - stage III, borderline resectable. I had 12 treatments of FOLFIRINOX and followed by a Whipple...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2023
Discussion
Switching to chemoradiation (Xeloda + radiation): What to expect?
To address chemo resistance and hopefully lower my CA 19-9, we are likely going to switch my regimen from modified Folfiri (no oxali) to radiation...
Support Group: Pancreatic Cancer
Last active: Mar 30, 2024
Discussion
Help with Low WBC Count and Seizures
Hello Everyone, my father, 64yrs is a stage-3 pancreatic cancer patient with a history of pancreatitis and diabetes. He has had two rounds of Chemo...
Support Group: Pancreatic Cancer
Last active: Nov 12, 2023
Discussion
My dad (76) was diagnosed with stage iv pancreatic cancer
My dad (76) was diagnosed with stage iv pancreatic cancer with several liver mets. Did 5 cycles of FOLFIRINOX 5-FU. Progression scan this week showed...
Support Group: Pancreatic Cancer
Last active: May 4, 2023
Discussion
Travel & timing after local recurrence
Hello. I have appreciated people's openness and support on this site. This is my first time posting. My 64-year-old husband was diagnosed with PDAC in...
Support Group: Pancreatic Cancer
Last active: 2 days ago
Discussion
When to "stop"
Hi everyone, After my mom came back from her consultation at Mayo in February with positive news, I felt like our family could finally have...
Support Group: Pancreatic Cancer
Last active: Apr 17, 2023
Discussion
Negative Turn in a Long Journey
I was diagnosed with PC in March 2023 just after my 60th birthday, and have frequently checked this forum, read most of the posts and...
Support Group: Pancreatic Cancer
Last active: Mar 26 2:09pm
Discussion
Significant changes in food taste
I hope this message finds you well. I wanted to reach out because I have a question that's been on my mind lately. Over the...
Support Group: Pancreatic Cancer
Last active: Dec 12, 2025