Support Groups

Pancreatic Cancer Support Group

Public Support Group
556 total results
Discussion
Struggling to eat with pancreatic cancer: How do you manage?
I am really struggling to eat anything. I take creon 24000 unt with everything that I eat but constantly have stomach pain and diarrhea. What...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2020
Discussion
If you had Whipple surgery, what are you eating or not eating?
I am looking for help with diet after the whipple. I had the whipple 8 months ago. I am taking enzymes with meals and snacks...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2023
Discussion
Problems with enzymes and supplements
I am back again, 2 year survivor of Whipple. Have been unable to take Creon so started Metagentics spectra zyme pan 9x pancreatic enzyme. Help!!!...
Support Group: Pancreatic Cancer
Last active: Apr 8, 2023
Discussion
Diarrhea tips?
Hello all, My mom (74/F) was diagnosed with pancreatic cancer a couple months ago. She has started chemo and is fighting hard. Her quality of...
Support Group: Pancreatic Cancer
Last active: Dec 25, 2022
Discussion
How are others with pancreatic cancers managing diarrhea?
I am wondering how others with pancreatic cancers are managing diarrhea. I am using CREON and titrating it according to the amount of fat and...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2020
Discussion
Return of exocrine function?
As one of those currently having a love-hate relationship with Creon I'm wondering if anyone here has experienced any return of their own exocrine function...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2023
Discussion
Phantom smells?
Sorry to have yet another question for this group, but has anyone else experienced phantom smells? I'm on gemcitabine and abraxane for inoperable pancreatic adenocarcinoma,...
Support Group: Pancreatic Cancer
Last active: Mar 19, 2023
Discussion
Does anyone have chronic diarrhea?
My husband was diagnosed with acinar cell pancreatic cancer of the head Oct 11 2024 he started with diarrhea prior to diagnosis May 2024 with...
Support Group: Pancreatic Cancer
Last active: Feb 14 8:32am
Discussion
Sucrose intolerance in EPI?
Since being diagnosed with EPI, I have had an almost continuous feeling of bloating & gassiness. This is made much worse by Stevia, so that...
Support Group: Pancreatic Cancer
Last active: Jul 17, 2023
Discussion
Has anyone had any experience taking the drug Ursodiol?
I am looking for feedback from anyone who has taken Ursodiol. My oncologist prescribed 300 mg twice a day for one month in the hopes...
Support Group: Pancreatic Cancer
Last active: Nov 27, 2024