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Pancreatic Cancer Support Group

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Discussion
Creon - am I taking too much or too little?
Hi - pancreatic cancer person here. (Surgery 14 years ago removed tail, recurrence on head a year ago, currently in remission after treatment including hi-dose...
Support Group: Pancreatic Cancer
Last active: Feb 27 9:09am
Discussion
Anyone have stomach aches from Creon or developed SIBO?
Hi. Its Lilliejane2 again. I posted some good news about results of recent EUS, but I also have a question about ongoing abdominal discomfort and...
Support Group: Pancreatic Cancer
Last active: Aug 14, 2023
Discussion
Is anyone taking Zenpep rather than Creon? If so what foods work?
I do not have diarrhea, but I have many bowel movements as my digestive system doesn't seem to get the nutrients needed. I go uup...
Support Group: Pancreatic Cancer
Last active: Nov 29, 2024
Discussion
What are other survivors doing about pancreatic enzymes replacement?
I am a 4 year survivor of pancreatic cancer. I have been on creon since my Whipple. It is very expensive. I talked to someone...
Support Group: Pancreatic Cancer
Last active: Dec 7, 2025
Discussion
Is GOODRX trustworthy?
Anyone have bad experiences getting their Creon thru GOODRX?
Support Group: Pancreatic Cancer
Last active: Feb 5, 2024
Discussion
Watery stool after Whipple surgery
I had Whipple surgery done two weeks ago, I have suffered watery stool ever since. Tried Imodium 4 times a day, started CREON with each...
Support Group: Pancreatic Cancer
Last active: Feb 3, 2024
Discussion
Anyone have chronic diarrhea while on digestive enzymes?
Has anyone experienced chronic diarrhea using digestive enzymes like Zenpep or Creon? If so, did adjusting the dosage help?
Support Group: Pancreatic Cancer
Last active: Jul 8, 2025
Discussion
How to deal with stomach problems
My wife is stage IV, diagnosed in July 2023, she has endured 10 chemo sessions. Her C19 went form 880 to 1200 and is now...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2023
Discussion
Struggling to eat with pancreatic cancer: How do you manage?
I am really struggling to eat anything. I take creon 24000 unt with everything that I eat but constantly have stomach pain and diarrhea. What...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2020
Discussion
Color me confused (2 questions)
Background: diagnosis = metastatic adenocarcinoma of the pancreas; Now receiving modified "rescue" Folfurinox regimen; following a course of G-A that had to be adjusted in...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2023