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Pancreatic Cancer Support Group

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Discussion
Concerned about increase in CA 19 score during treatment
Any experience with CA 19 score 26 months post surgery? During this time period my wife had surgery, radiation, and chemotherapy. She is currently on...
Support Group: Pancreatic Cancer
Last active: Feb 21 8:35am
Discussion
CA 19-9 and pancreatic cancer: What do the numbers mean?
What is your opinion on these numbers? Was diagnosed in September 2019 and my ca 19-9 was 7500. New number yesterday was 909 after 9...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2025
Discussion
Why CA-19-9 Test not included in annual lab tests
Does anyone know why the CA-19-9 test is not part of the annual labs for routine health checks? Do you have to ask your primary...
Support Group: Pancreatic Cancer
Last active: Dec 3, 2023
Discussion
CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?
Hello,My husband was recently diagnosed with pancreatic cancer. He presented with bad gastritis and quickly became jaundice. He was admitted to the emergency room where...
Support Group: Pancreatic Cancer
Last active: Jul 27, 2025
Discussion
CA 19-9 decrease after two rounds of chemo: Is this good news?
My mother was diagnosed with pancreatic cancer in August. Her CA 19-9 was 2704 on 9/10/24. In October we were told the cancer had spread...
Support Group: Pancreatic Cancer
Last active: Dec 18, 2024
Discussion
Another CA-19 post...How do you not freak out when it rises?
How would yall feel about fluctuating/rising CA-19?Diagnosed August 2022 (ca19 of 174). Surgery July 2023 (ca19 of 12 at surgery, 43 a month after surgery)....
Support Group: Pancreatic Cancer
Last active: Nov 19, 2024
Discussion
Chemo without any cancer showing on scan or MRI?
distal pancreatectomy and splenectomy in july 2024before and after surgery normal CA-19-9 ( 15 to 20)folfirinox from sept 2024 to april 2025 (10 cycles)CA-19-9 went...
Support Group: Pancreatic Cancer
Last active: Feb 18 10:30am
Discussion
How important is rising Ca19-9 if CT is stable re: having surgery?
I was diagnosed with stage 1 pan can September 2023. Tumor was 1.8 cm in the neck. I took 2 cycles of Gemzar/ Abraxane in...
Support Group: Pancreatic Cancer
Last active: Jan 2, 2024
Discussion
2 questions: Interpretation of CA19-9. SBRT methods.
Hi. I was diagnosed with inoperable pancreatic cancer stage 4. Locally advanced. I am in my 16th session if folfirinox. After session 3-4, irinotecan was...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2023
Discussion
post whipple strange labs
My Mom (65) had her whipple 5 weeks ago. She's already done 6 rounds of chemo. Her CA-19 was 416 when diagnosed and 110 right...
Support Group: Pancreatic Cancer
Last active: Nov 21, 2024