Support Groups

Pancreatic Cancer Support Group

Public Support Group
1,150 total results
Discussions (108)
High CA-19 4,500
I recently had my pancreas removed and they said all cancer was gone. Follow up pet scan and blood work shows no infection, no cancer...
Support Group: Pancreatic Cancer
Last active: May 29, 2024
CA 19-9 high but no malignancy
Hello, My mom (75 years old) was diagnosed with pancreatic cancer early last year. She had surgery to remove her spleen and half of her...
Support Group: Pancreatic Cancer
Last active: Sep 24, 2023
CA-19 numbers continuing downward
For those of you following the saga of my friend who's been driving me nuts at times ....just wanted to give you an update and...
Support Group: Pancreatic Cancer
Last active: Jan 10, 2024
elevation of ca-19 in benign appearing PMNs
I have several Pancreatic mucinous neoplasms, being monitored by MRI . None have shown any dangerous transformation in the past @ 3 years. However, my...
Support Group: Pancreatic Cancer
Last active: Oct 2, 2024
CA-19 has elevated even more
So for those of you who were kind enough to respond to my previous posts THANK YOU and once again i'm reaching out... so they...
Support Group: Pancreatic Cancer
Last active: Oct 25, 2023
CA 19-9 >2300: What questions to ask?
My mom was diagnosed in 2021 with Stage 3 pancreatic cancer. Had a whipple and went thru chemo and radiation and has been in remission...
Support Group: Pancreatic Cancer
Last active: 2 days ago
CA 19-9, sensitivity and responsiveness to treatment
I'm stage 4, inoperable adenocarcinoma in the body of the pancreas. I'm on modified Folfiri, 60 percent of typical dose, and have completed 20 rounds....
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Pseudo cyst / CA 19-9 trending up
I’m 7 months from a successful surgery. Half pancreas and spleen removed. No lymph node involvement. I have a pseudo cyst of fluid from the...
Support Group: Pancreatic Cancer
Last active: Dec 2, 2023
Elevated CA-19-9 for over 2 years
After an appendectomy (due to appendicitis), they noticed whitish-gray mucus in my abdomen. My initial thought was PMP (Appendix cancer), but after pathology's second opinion,...
Support Group: Pancreatic Cancer
Last active: Aug 16, 2024
Is CA 19-9 a lagging indicator? How is it used?
My husband has had pancreatic cancer for over three years. Every time his Ca 19-9 markers rise, his oncologist says they’re a lagging indicator and...
Support Group: Pancreatic Cancer
Last active: Feb 22 6:23pm
CA 19-9 and pancreatic cancer: What do the numbers mean?
What is your opinion on these numbers? Was diagnosed in September 2019 and my ca 19-9 was 7500. New number yesterday was 909 after 9...
Support Group: Pancreatic Cancer
Last active: Sep 9, 2023
Why CA-19-9 Test not included in annual lab tests
Does anyone know why the CA-19-9 test is not part of the annual labs for routine health checks? Do you have to ask your primary...
Support Group: Pancreatic Cancer
Last active: Dec 3, 2023
CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?
Hello,My husband was recently diagnosed with pancreatic cancer. He presented with bad gastritis and quickly became jaundice. He was admitted to the emergency room where...
Support Group: Pancreatic Cancer
Last active: Mar 1 9:42am
CA 19-9 decrease after two rounds of chemo: Is this good news?
My mother was diagnosed with pancreatic cancer in August. Her CA 19-9 was 2704 on 9/10/24. In October we were told the cancer had spread...
Support Group: Pancreatic Cancer
Last active: Dec 18, 2024
Another CA-19 post...How do you not freak out when it rises?
How would yall feel about fluctuating/rising CA-19?Diagnosed August 2022 (ca19 of 174). Surgery July 2023 (ca19 of 12 at surgery, 43 a month after surgery)....
Support Group: Pancreatic Cancer
Last active: Nov 19, 2024
CA19-9 decreasing post surgery: Chose active surveillance over chemo
Just got my first results back after having Whipple surgery 4 months ago and the CA 19-9 was 13.20 Had Stage 1A pancreas cancer and...
Support Group: Pancreatic Cancer
Last active: Apr 12, 2022
How important is rising Ca19-9 if CT is stable re: having surgery?
I was diagnosed with stage 1 pan can September 2023. Tumor was 1.8 cm in the neck. I took 2 cycles of Gemzar/ Abraxane in...
Support Group: Pancreatic Cancer
Last active: Jan 2, 2024
post whipple strange labs
My Mom (65) had her whipple 5 weeks ago. She's already done 6 rounds of chemo. Her CA-19 was 416 when diagnosed and 110 right...
Support Group: Pancreatic Cancer
Last active: Nov 21, 2024
2 questions: Interpretation of CA19-9. SBRT methods.
Hi. I was diagnosed with inoperable pancreatic cancer stage 4. Locally advanced. I am in my 16th session if folfirinox. After session 3-4, irinotecan was...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2023
Pancreatic Cancer - No signs of spread, Whipple Candidate
Hi and so glad to be part of this group. My husband was diagnosed with Pancreatic Cancer this month. 5.8 cm in the head of...
Support Group: Pancreatic Cancer
Last active: Oct 28, 2022