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Pancreatic Cancer Support Group

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Discussions (121)
Liver biopsy damage as seen on CT scan?
Greetings: Bear with me; I need to provide some background before asking my question… In September 2023, after 8 rounds of neoadjuvant chemotherapy (Folrifinox), I...
Support Group: Pancreatic Cancer
Last active: Sep 21, 2024
I'm back: increasing CA19-9 was accurate indicator of recurrence.
I had posted back in mid-November that my CA19-9 levels had been increasing and I was experiencing back pains at night, but there was no...
Support Group: Pancreatic Cancer
Last active: Jun 3, 2025
Pancreatic Tumor Genome/Mutation testing
Hello. Does anyone know what is criteria for further genomic/mutation testing of Pancreatic tumor post Whipple? My husband had PDAC. Completed 9 rounds of Neoadjuvant...
Support Group: Pancreatic Cancer
Last active: Feb 21 8:10am
Help with clinical trials (RMC-6236 and it's variations)
Hi everyone, My husband who has stage 4 pancreatic cancer is approaching the end of his chemotherapy treatment and i'm trying to explore next step...
Support Group: Pancreatic Cancer
Last active: Apr 8 8:06am
Is anyone on Capecitabine for pancreatic cancer?
Greetings, is anyone on this currently?I’ve been advised it is an oral version (reduced) of folfurinox.Wondering if any side effects you may have experienced.Is it...
Support Group: Pancreatic Cancer
Last active: Mar 26, 2024
What is it like after Whipple surgery plus 1 1/2 years?
Hello to everyone! I have not posted on this site for some time, but realize there are continually those folks who are facing pancreatic cancer,...
Support Group: Pancreatic Cancer
Last active: Aug 8, 2023
Anyone with KRAS G12V mutation with an alternative approach to SoC?
Hi everyone, My husband was diagnosed with pancreatic cancer, age 55 and had Whipple surgery in April. Upon diagnosis he was staged 3 and after...
Support Group: Pancreatic Cancer
Last active: Sep 23, 2025
Seeking input re: questions to ask my oncologist 5 weeks post-Whipple
Hello, and thanks for helping me. I know that this is a lot to read thru, and if you don't feel like it, I get...
Support Group: Pancreatic Cancer
Last active: Nov 12, 2023
Anyone have late effects of chemo? Watery eyes & blurry vision
Question for my friends here. I had 12 cycles of Fulfirinox last year, finished one month ago, December 19. And had watery eyes intermittently (due...
Support Group: Pancreatic Cancer
Last active: Feb 5 10:10am
Has anyone take erlotinib (Tarceva) for Pancreatic Cancer?
Hi, did anyone had Tarceva as a targeted therapy for PanCan? I have unoperable adenocarcinoma st IV, went through 8 or 9 rounds of Folfrinox...
Support Group: Pancreatic Cancer
Last active: Feb 1, 2025
Pancreatic cancer returned as mets to ovary: Looking for hope
My mom found out after 3 years NED that there is a mass of soft tissue outside her ovary pushing on her bladder. She had...
Support Group: Pancreatic Cancer
Last active: Dec 26, 2022
KRASG12D mutation and Gem/Abr
Hello, I’m curious if anyone with pancreatic ductal adenocarcinoma with KRASG12D mutation has had any response with Gemcitibin/Abraxane. After 5 rounds of Folfurinox my tumor...
Support Group: Pancreatic Cancer
Last active: Aug 14, 2025
Peritoneal carcinomatosis--how do we cope with this diagnosis?
How do I deal with the diagnosis of peritoneal carcinomatosis (metastasis from pancreatic cancer)? I am almost 2 years past my Whipple; no chemo since...
Support Group: Pancreatic Cancer
Last active: Apr 4, 2025
Question regarding “dead” tumor
I’ve read several posts mentioning dead tumors and was wondering how do you know it’s dead and what treatment did you receive. My husband was...
Support Group: Pancreatic Cancer
Last active: Nov 8, 2023
Pancreatic Cancer - Has anyone had experience with Metabolic Oncology?
My husband has stage IV Pancreatic Cancer. His is taking Folfironox every two weeks. He has also begun high dose Vitamin C infusions between his...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2024
Next steps when chemo response stops
My husband (Stage 4 / whipple / liver mets) has stopped responding to his chemo regimen. Even though his liver mets had dissapeared upon starting...
Support Group: Pancreatic Cancer
Last active: Nov 24, 2025
Mom not responding to chemo
my mom just got her latest scans back and no change in tumor size. background story: my mom was dx with pc 3 years ago....
Support Group: Pancreatic Cancer
Last active: Dec 12, 2022
Recurrence at SMA Lymph node
Hi all, My father is currently suffering from recurrent pancreatic cancer (moderately differentiated adenocarcinoma). He is diagnosed and underwent Whipple surgery in July 2023 which...
Support Group: Pancreatic Cancer
Last active: Jan 27, 2025
Color me confused (2 questions)
Background: diagnosis = metastatic adenocarcinoma of the pancreas; Now receiving modified "rescue" Folfurinox regimen; following a course of G-A that had to be adjusted in...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2023
Whipple procedure and follow up chemo
I had the Whipple procedure done at Mayo 2/8/19 and got out of hospital on 2/19. Had to go back to my local hospital a...
Support Group: Pancreatic Cancer
Last active: Dec 18, 2022