Connect
Public Support Group 1,286 total results
Discussions (117)
What to expect from Gemcitibine chemo/radiation?
I was diagnosed with stage III pancreatic cancer in Jan 2021. Whipple surgery was performed the following month, followed by 12 treatments of Folfirinox. All...
Anyone participate in RMC9805 and RMC6236 clinical trials?
My mom is fighting pancreatic cancer. She had 12 rounds of FOLFIRINOX, followed by 15 fractions of chemoradiation in a hope to have a Whipple...
Contrast and MRI: Did you have a reaction? How was it handled?
Months ago I had a MRI with contrast and had a terrible reaction. Yesterday, July 13, 2023, I refused the CT scan with contrast. Consequently,...
Anyone have experience with mRNA trials for pancreatic cancer?
Hi! I was diagnosed December 2023, had modified Whipple February 2024 with clear margins, completed 12 rounds of Folfirinox in September. CA19-9 and CT scans...
Is there an early way to detect blood clots?
I’m stage 4 PC patient who recently completed MRIdean (mapped) radiation to a small lesion in my liver, my CA19-9 tumor marker is now within...
Is a 2-week break between adjuvant radiotherapy & chemo okay?
My relative has been diagnosed with stage 2b and has undergone whipple on July with 3/15 nodes positive and one area with close margin. Adjuvant...
Dilation on pancreas- what should have been done?
Hi! My mom had a dilation on her pancreas. She had been complaining about pain in that area for a while. It was discovered while...
How can I find out which type of cyst I have?
Hello everyone, thank you for accepting me. On 6th December 2021, I had an ultrasound, and the doctor found a cyst at the body of...
What's next after folfirinox?
My husband is on #11 (next Monday) of 12 cycles of folfirinox. Dr has said he is throwing the whole kitchen sink at him with...
Which questions should I ask my surgeon? (I think Whipple is likely.)
Hello and thanks. I had my 8th (of 8) Folfirinox infusions last week and will soon meet with my surgeon. I have no idea what...
End game. What to expect?
I'm a 75 year old guy 15 months into my fight with pancreatic cancer. When I asked my Mayo Clinic oncologist what was my prognosis...
Pancreatic adenocarcinoma: Late recurrence in ovary
Hi all,I’ve lurked on this board off and on for years but this is my first post. My mom (68, in excellent health) had a...
NED: the highs and lows of No Evidence of Disease
NED, No Evidence of Disease are 3 words that are music to my ears. I heard them last week and it was a joy to...
Has anyone had Folfirinox stop working and had to start a new chemo dr
I have stage IV pancreatic cancer. I had a cyst which turned out to be cancerous. Long story short, I had 20 sessions of Folfirinox...
Has anyone had cancer on their hepatic/celiac arteries? What treatment
First of all I want to immensely thank markymarkfl & jk77 for responding to a message that was actually a response to someone else's post...
New Cancer Patient Managing Pain Issues
I am 61 and diagnosed with pancreatic cancer in mid-January. I have had a long history with gallstones and kidney stones and was having what...
Benign or Malignant IPMN? What to do next?
Hey all and as per my name I am Mario. I hope you "well" and safe.. Why somebody from the UK be at these forums?...
Connect