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Pancreatic Cancer Support Group

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Discussions (121)
Pancreatic cancer and CA19-9
I have just finished my 13th Folfirinox regimen for pancreatic cancer stage IV. I was diagnosed in May of 2022. I still have no symptoms...
Support Group: Pancreatic Cancer
Last active: Feb 5, 2023
Which questions should I ask my surgeon? (I think Whipple is likely.)
Hello and thanks. I had my 8th (of 8) Folfirinox infusions last week and will soon meet with my surgeon. I have no idea what...
Support Group: Pancreatic Cancer
Last active: Aug 30, 2023
Switching to chemoradiation (Xeloda + radiation): What to expect?
To address chemo resistance and hopefully lower my CA 19-9, we are likely going to switch my regimen from modified Folfiri (no oxali) to radiation...
Support Group: Pancreatic Cancer
Last active: Mar 30, 2024
Help with Low WBC Count and Seizures
Hello Everyone, my father, 64yrs is a stage-3 pancreatic cancer patient with a history of pancreatitis and diabetes. He has had two rounds of Chemo...
Support Group: Pancreatic Cancer
Last active: Nov 12, 2023
My dad (76) was diagnosed with stage iv pancreatic cancer
My dad (76) was diagnosed with stage iv pancreatic cancer with several liver mets. Did 5 cycles of FOLFIRINOX 5-FU. Progression scan this week showed...
Support Group: Pancreatic Cancer
Last active: May 4, 2023
Is this monitoring regimen too “hands off?”
Diagnosed with pancreatic adenocarsinoma in 2023 after acknowledging that coffee colored urine and yellow skin were not normal. Had Whipple November 2023 to remove small...
Support Group: Pancreatic Cancer
Last active: Jul 27, 2025
CA19-9 going up and back pain at night - recurrence?
I was diagnosed with pancreatic cancer in July 2022 - stage III, borderline resectable. I had 12 treatments of FOLFIRINOX and followed by a Whipple...
Support Group: Pancreatic Cancer
Last active: Nov 16, 2023
Travel & timing after local recurrence
Hello. I have appreciated people's openness and support on this site. This is my first time posting. My 64-year-old husband was diagnosed with PDAC in...
Support Group: Pancreatic Cancer
Last active: Apr 15 7:19am
When to "stop"
Hi everyone, After my mom came back from her consultation at Mayo in February with positive news, I felt like our family could finally have...
Support Group: Pancreatic Cancer
Last active: Apr 17, 2023
Significant changes in food taste
I hope this message finds you well. I wanted to reach out because I have a question that's been on my mind lately. Over the...
Support Group: Pancreatic Cancer
Last active: Dec 12, 2025
There is hope!
Hi everyone, It's been a while since I've posted here. My mom was diagnosed with pancreatic cancer in July 2022 and underwent 6.5 months of...
Support Group: Pancreatic Cancer
Last active: Jul 27, 2023
Abort chemo Rx & go straight to surgery while I am still Stage 1?
I was very fortunate in how my stage one pancreatic cancer was diagnosed. In August 2023, I had an unrelated intestinal surgery and three weeks...
Support Group: Pancreatic Cancer
Last active: Apr 12, 2024
My HIPEC experience and pancreatic cancer
I had mentioned having the HIPEC procedure in one of the other discussions and there was interest from others in more discussion, so here goes....
Support Group: Pancreatic Cancer
Last active: Jul 24, 2024
Pancreatic adenocarcinoma: Late recurrence in ovary
Hi all,I’ve lurked on this board off and on for years but this is my first post. My mom (68, in excellent health) had a...
Support Group: Pancreatic Cancer
Last active: Jan 3, 2025
Dad has sepsis, I'm terrified
Hi. My dad was recently diagnosed with stage IV pancreatic adenocarcinoma with metastasis to liver and peritoneum. He received his first dose of folfirinox almost...
Support Group: Pancreatic Cancer
Last active: Dec 19, 2022
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2023
Pancreatic cancer recurrence at 2 years: Treatment change
I haven't checked in for a while... My wife was diagnosed in July 2019 right after her 61st birthday. Had 9 rounds of Folfirinox, then...
Support Group: Pancreatic Cancer
Last active: Jun 28, 2021
2 questions: Interpretation of CA19-9. SBRT methods.
Hi. I was diagnosed with inoperable pancreatic cancer stage 4. Locally advanced. I am in my 16th session if folfirinox. After session 3-4, irinotecan was...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2023
Negative Turn in a Long Journey
I was diagnosed with PC in March 2023 just after my 60th birthday, and have frequently checked this forum, read most of the posts and...
Support Group: Pancreatic Cancer
Last active: Mar 26 2:09pm
Pancreatic Cancer Stage IV and in partial remission
I was diagnosed with stage IV pancreatic cancer July of 2017. The tumor markers were 6670. A 2 inch tumor was found in the head...
Support Group: Pancreatic Cancer
Last active: Dec 30, 2022