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Discussions (80)
Intraductal Papillary Mucinous Neoplasms (IPMN) with symptoms
I have a 12mm IPMN: CT and MRI. I’m scheduled for EUS-FNA on Wednesday. I have symptoms now: upper back pain, stomach pain, nausea, weight...
Dental extraction and chemo treatments
Has anyone experienced the need for dental extractions while on chemo? My wife needs a couple of tooth extractions/surgeries and replacements in order to eat...
New diagnosis: locally advanced pancreatic cancer
I'm new to the Mayo board, but not a Mayo patient and not in MN. This week I received a new diagnosis of locally advanced...
Another CA-19 post...How do you not freak out when it rises?
How would yall feel about fluctuating/rising CA-19?Diagnosed August 2022 (ca19 of 174). Surgery July 2023 (ca19 of 12 at surgery, 43 a month after surgery)....
KRASG12D mutation and Gem/Abr
Hello, I’m curious if anyone with pancreatic ductal adenocarcinoma with KRASG12D mutation has had any response with Gemcitibin/Abraxane. After 5 rounds of Folfurinox my tumor...
What is your Recovery Advice for a Distal Pancreatectomy?
Hello. I have a pancreatic neuroendocrine tumor in the tail of my pancreas. My surgeon at the Mayo Clinic has scheduled a distal pancreatectomy (and...
Met my new oncologist yesterday
I've posted twice about my frustrations with my first oncologist. I asked for a referral to another MD, and yesterday (Fri 7/14) we met for...
Any experiences with Gemcitabine + Abraxane as second line treatment?
My 45yr old husband was diagnosed with stage IV pancreatic adenocarcinoma in Sept 2025. It had metastasized to his liver and spleen. He started out...
2nd opinion would require a diag. lap within 90 days of last one
I am 70 and was diagnosed with Stage 1 pan can 9/23. Initially took Abraxane/Gemzar for 2 months, then stopped due to chemo- induced pneumonia/pneumonitis...
Drug Doubles Survival Time - Saltikva
Anyone know how to obtain the drug Saltikva which earned fast-track FDA approval in Jan 2022. Studies have shown the Salmonella IL2 drug Saltikva doubled...
Pancreatic cancer - New treatments, better outcomes
From the Mayo Clinic Health Letter, January 2021. Pancreatic cancer New treatments, better outcomes Pancreatic cancer begins in the tissues of your pancreas — an...
Pancreatic Cancer Stage IV and in partial remission
I was diagnosed with stage IV pancreatic cancer July of 2017. The tumor markers were 6670. A 2 inch tumor was found in the head...
Unable to get a sample for a biopsy
So my aunt has continued to get tested for what looks like what might be pancreatic cancer. Today she was supposed to get her biopsy...
Distal pancreactomy with shrinking cyst
Hello I am 36 yrs women, detected with a 5.8 cm cyst on the tail of my pancreas on Aug 16 and had acute pancreatitis....
Stage IV
Brother was diagnosed with stage IV pancan. He had his first treatment of folfirinox last week. He did alright but did have 3 full days...
How do you adjust to life after a splenectomy? (Diet + Avoiding Fever)
Hey y'all, my mother just had a major cancer surgery at Mayo that removed her gallbladder, a third of her stomach, appendix, and spleen. She...
Changing chemo regimen after 4 cycles of Folfirinox?
I'm a 74 y.o. guy diagnosed with Adenocarcinoma at the head of my pancreas (Stage 1b). My initial diagnosis and first round of Folfirinox occurred...
Are you eligible for surgery with vascular involvement?
My Dr wants to remove my entire pancreas spleen and stomach. I’ll be type 1 diabetic and have chronic diarrhea. I’m not sure about life...
Is anyone taking Zenpep rather than Creon? If so what foods work?
I do not have diarrhea, but I have many bowel movements as my digestive system doesn't seem to get the nutrients needed. I go uup...
My Sister's Battle with pancreatic ductal adenocarcinoma (PDAC)
Well, we are now at about 10 months from the time she became jaundiced. We got to Mayo within ten days or so, had full...
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