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Discussions (109)
Where is best place to go for second opinion for stage 4 pancreatic?
I was diagnosed in December 2021. I have done 12 chemos (FILFORX) followed by 8 SBRTs five to the Pancreas in Three to liver. All...
Bone pain with chemo: What helps?
I have a high ca-19 so I am back on chemo. It is so painful, starts in knees and goes from head to toe. Have...
Sharp increase in CA19-9
Wife had Whipple surgery in December 2023. Pathology was stage 2b. Post-surgery, she was considered cancer free (not to be mistaken for cured). After some...
What were your tumor marker results at time of stage 4 diagnosis?
So far, I have only the CA 19-9 and CEA results from March, when we thought we were establishing baseline info because I was (at...
Surgical options for borderline resectable/locally advanced tumors
My mom was diagnosed with pancreatic cancer in July 2022. She was not eligible for surgery at the time due to SMA encasement, so she...
Dilaudid for pancreatic attacks.
I have constant stomach pain, have been cancer free for 2 1/2 years. My pain doctor gave me Dilaudid for pain and wondering if anyone...
Pancreatic cancer and CA19-9
I have just finished my 13th Folfirinox regimen for pancreatic cancer stage IV. I was diagnosed in May of 2022. I still have no symptoms...
Oxaliplatin: What are the effects of dropping it from FOLFIRINOX?
Diagnosed in Dec 2021 with stage 4 PANCAN with metastsis to liver. Started Foflornix in Jan 2022. Did 12 treatments, last one without Oxeplatin because...
Monitoring a Pancreatic Cyst?
Hello,…I have to ask for people’s experience and support. I am 68 years old. In June of 2022, during a routine examination (for a hernia)...
Pancreatic cancer - New treatments, better outcomes
From the Mayo Clinic Health Letter, January 2021. Pancreatic cancer New treatments, better outcomes Pancreatic cancer begins in the tissues of your pancreas — an...
CA19-9 rise while on maintenance chemo
I know CA19-9 results aren't everything. But my husband's numbers have pretty consistently fallen from a high of 3900+ since last November. Down about 99%...
Husband’s CA19-9 plunged by 90%
Hi, My husband just finished 11 rounds of chemo with oxaliplatin and irinitican. During this time, he also has been working with a nutritionist to...
frustrated to no end with friend
so... from friend has had his CA-19 drop drastically which is great... (33k-3k in a month) what isn't great is the fact he refuses to...
CA19-9 Test: How often to test?
How often do you do a CA19-9 blood test? My PDAC surgery, treatment, etc., was done at a cancer center in another state. I still...
Rising CA19-9 numbers but scans ok
My husband's numbers have been on the rise the last couple months from 325 lowest to over 1200 this week. Each time (every other week)...
CEA and CA19-9 Results as Predictors of Treatment Outcome
https://connect.mayoclinic.org/discussion/cea-and-ca19-9-results-as-predictors-of-treatment-outcome/
I had a distal pancreatectomy and splenectomy on May 17 following a diagnosis of pT2N2 ductal adenocarcinoma. Surgery was done utilizing laproscopic/robotic method at MGH...
PAC-MANN, New Diagnostic Blood Test?
I’ve have been reading about a number of new diagnostic blood tests for early detection of cancer, including PAC. Specifically a test called PAC-MANN which...
There is hope!
Hi everyone, It's been a while since I've posted here. My mom was diagnosed with pancreatic cancer in July 2022 and underwent 6.5 months of...
Apparently my friend's cancer has spread: How can I help him?
For those of you who had been following my friend's journey, after his surgery they told us they believed they got it all, wanted him...
CA19 increase, gaining weight and feeling better - Confused
Diagnosed in Dec. 2023 - Stage 3 borderline resectable - CA19 217. Did 6 rounds of 5FU and CA19 went down to a low of...
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