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Discussions (88)
Dilaudid for pancreatic attacks.
I have constant stomach pain, have been cancer free for 2 1/2 years. My pain doctor gave me Dilaudid for pain and wondering if anyone...
Surgical options for borderline resectable/locally advanced tumors
My mom was diagnosed with pancreatic cancer in July 2022. She was not eligible for surgery at the time due to SMA encasement, so she...
Pancreatic cancer and CA19-9
I have just finished my 13th Folfirinox regimen for pancreatic cancer stage IV. I was diagnosed in May of 2022. I still have no symptoms...
Oxaliplatin: What are the effects of dropping it from FOLFIRINOX?
Diagnosed in Dec 2021 with stage 4 PANCAN with metastsis to liver. Started Foflornix in Jan 2022. Did 12 treatments, last one without Oxeplatin because...
Monitoring a Pancreatic Cyst?
Hello,…I have to ask for people’s experience and support. I am 68 years old. In June of 2022, during a routine examination (for a hernia)...
CA19-9 rise while on maintenance chemo
I know CA19-9 results aren't everything. But my husband's numbers have pretty consistently fallen from a high of 3900+ since last November. Down about 99%...
Husband’s CA19-9 plunged by 90%
Hi, My husband just finished 11 rounds of chemo with oxaliplatin and irinitican. During this time, he also has been working with a nutritionist to...
frustrated to no end with friend
so... from friend has had his CA-19 drop drastically which is great... (33k-3k in a month) what isn't great is the fact he refuses to...
CA19-9 Test: How often to test?
How often do you do a CA19-9 blood test? My PDAC surgery, treatment, etc., was done at a cancer center in another state. I still...
CEA and CA19-9 Results as Predictors of Treatment Outcome
https://connect.mayoclinic.org/discussion/cea-and-ca19-9-results-as-predictors-of-treatment-outcome/
I had a distal pancreatectomy and splenectomy on May 17 following a diagnosis of pT2N2 ductal adenocarcinoma. Surgery was done utilizing laproscopic/robotic method at MGH...
Does a change in CA19-9 indicate change in tumor?
is there a formula which converts % change in CA19-9 values to change in tumor dimensions?For example: if the difference between two CA19-9 readings is...
There is hope!
Hi everyone, It's been a while since I've posted here. My mom was diagnosed with pancreatic cancer in July 2022 and underwent 6.5 months of...
Apparently my friend's cancer has spread: How can I help him?
For those of you who had been following my friend's journey, after his surgery they told us they believed they got it all, wanted him...
radiation begins next week
So my friend came through surgery ok, healed up good etc..got set up for radiation beginning next Wed...for 5.5 weeks.. he'll also be doing oral...
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
CA19 increase, gaining weight and feeling better - Confused
Diagnosed in Dec. 2023 - Stage 3 borderline resectable - CA19 217. Did 6 rounds of 5FU and CA19 went down to a low of...
Pre-Whipple CA 19.9 levels. What was yours?
For those willing to share, what your CA 19.9 level just prior to Whipple surgery? Diagnosed about 10 months with pancreatic cancer at Stage 1B...
Pancreatic mass
Because of a BRCA gene variant, I had a pancreatic ultrasound done with my endoscopy. He found a mass on the pancreatic tail and did...
CA19-9 going up and back pain at night - recurrence?
I was diagnosed with pancreatic cancer in July 2022 - stage III, borderline resectable. I had 12 treatments of FOLFIRINOX and followed by a Whipple...
How high a CA19-9 have you had/seen?
I’ve done a little reading to see general thoughts on prognosis with really high pre treatment CA19-9 levels. The highest I have seen was an...
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