Pancreatic Cancer Support Group

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Comments (347)

I’m being treated at Mayo Clinic in Jax, FL. I go every four months for followup...

https://connect.mayoclinic.org/comment/1033858/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 15, 2024

I can’t understand some of your terms. Also, I am on Zenpep, not Creon. One thing...

https://connect.mayoclinic.org/comment/885424/

Discussion: Color me confused (2 questions)

Support Group: Pancreatic Cancer

Posted: Jun 26, 2023

in reply to @geraldine1961 I too have the dilation of the pancreatic duct, as well as...

https://connect.mayoclinic.org/comment/856406/

Discussion: Dilated pancreatic duct: What to do?

Support Group: Pancreatic Cancer

Posted: May 8, 2023

Frankly I'm afraid to try as I start radiation treatments this week and I don't want...

https://connect.mayoclinic.org/comment/315354/

Discussion: How are others with pancreatic cancers managing diarrhea?

Support Group: Pancreatic Cancer

Posted: Jul 5, 2020

@rtw007 my wife was diagnosed at stage 3 in 2019 and immediately started folfirinox (including 5fu...

https://connect.mayoclinic.org/comment/611507/

Discussion: What chemo did you have with stage 4 pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Jun 25, 2021

I would be interested in hearing from people that have gone through chemo (capecitabine)/radiation following Folfirinox...

https://connect.mayoclinic.org/comment/976076/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Dec 6, 2023

I should have mentioned also, that the dietary supplement shakes don't always work. Everyone wanted my...

https://connect.mayoclinic.org/comment/326770/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 11, 2021

I had my pancreas, gallbladder, and spleen removed 3 months ago. Initial recovery in the hospital...

https://connect.mayoclinic.org/comment/957221/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 1, 2023

My husband celebrated his one year Whipple surgery in February. He had a “rarest of rare...

https://connect.mayoclinic.org/comment/257698/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 11, 2019

My husband just finished his Chemo treatments w/ Folfirinox 3 weeks ago. He had the Whipple...

https://connect.mayoclinic.org/comment/946924/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Oct 13, 2023

I don’t know what worked. The Imodium did make a difference. Maybe increasing the Zenpep helped....

https://connect.mayoclinic.org/comment/1033408/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Mar 14, 2024

That’s interesting. I stay away from processed foods as much as possible, I read every label...

https://connect.mayoclinic.org/comment/1189965/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Dec 13, 2024

P.S. to my reply to you. If you take 2/3 Imodium each day. When are you...

https://connect.mayoclinic.org/comment/891715/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

I was reading with interest the reports on pancreatic cysts. I have one that is being...

https://connect.mayoclinic.org/comment/664126/

Discussion: Pancreatic cyst

Support Group: Pancreatic Cancer

Posted: Dec 21, 2021

@beachdog, @fassbinder, @marvinjsturing, and others. I know you have all been discussing supplements to help with...

https://connect.mayoclinic.org/comment/208595/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

I have been told by my surgeon that I need to get a Whipple due to...

https://connect.mayoclinic.org/comment/1057465/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Apr 26, 2024

I just finished 25 treatments of this combination. It was easier than any of the other...

https://connect.mayoclinic.org/comment/972051/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Nov 29, 2023

Wow. You are amazing. Thanks for sharing. I have gone from 145 to 107 and have...

https://connect.mayoclinic.org/comment/850786/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: Apr 28, 2023

According to my husband’s Oncologist, oily stools mean an increase in Enzymes is needed. He had...

https://connect.mayoclinic.org/comment/934777/

Discussion: Lots of oil when going to the bathroom?

Support Group: Pancreatic Cancer

Posted: Sep 23, 2023

Disconnecting the pump is only if we want to do so, and we do, given the...

https://connect.mayoclinic.org/comment/871349/

Discussion: Nothing left to offer in the way of therapy?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023