Pancreatic Cancer Support Group

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Comments (897)

Really bad today! I must have chemo brain today after my chemo yesterday! When my chemo...

https://connect.mayoclinic.org/comment/1069429/

Discussion: "new" radiation therapy technique (SMART)

Support Group: Pancreatic Cancer

Posted: May 17 7:46am

Hi @anindita Our stage IV diagnosis was in Nov 2022. We have transitioned to a fully...

https://connect.mayoclinic.org/comment/1055339/

Discussion: Pancreatic Cancer with Mets to the Liver: Lost and wondering!

Support Group: Pancreatic Cancer

Posted: Apr 22 12:26pm

We all hope this is not tied to Pcan. But so very glad you will see...

https://connect.mayoclinic.org/comment/1094917/

Discussion: Pancreatic Cancer or Something else?

Support Group: Pancreatic Cancer

Posted: Jun 27 6:00am

Which ctDNA tests is everyone using? FWIW the Grail/Galleri cfDNA (cell-free DNA) blood test claims to...

https://connect.mayoclinic.org/comment/852227/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: Apr 30, 2023

Hi there, My potential reoccurrence of pan cancer occurred about Nov 1, 2023. I had a...

https://connect.mayoclinic.org/comment/1099063/

Discussion: Can we get cancer insurance after diagnosis?

Support Group: Pancreatic Cancer

Posted: Jul 4 9:21am

My CA19-9, which I have had done 13 times!, shows a lot of fluctuations from a...

https://connect.mayoclinic.org/comment/1074884/

Discussion: CA19 increase, gaining weight and feeling better - Confused

Support Group: Pancreatic Cancer

Posted: May 26 8:45am

This is very true regarding CA19 in normal range. Mine has gone from 16 to 22...

https://connect.mayoclinic.org/comment/1085909/

Discussion: Can radiation be given between finishing chemo and having Whipple?

Support Group: Pancreatic Cancer

Posted: Jun 13 5:45am

Hi, I am curious if they ever found a cause of your elevated ca 19.9? Has...

https://connect.mayoclinic.org/comment/1123295/

Discussion: Elevated CA-19-9 for over 2 years

Support Group: Pancreatic Cancer

Posted: Aug 14 3:42am

God sakes get a second opinion ! I still have no symptoms ms but my pancreatic...

https://connect.mayoclinic.org/comment/708196/

Discussion: Elevated CA-19-9 for over 2 years

Support Group: Pancreatic Cancer

Posted: May 14, 2022

Gamaryanne, do you have any updates on the clinical trial you are in? Do they do...

https://connect.mayoclinic.org/comment/1126236/

Discussion: Is a 2-week break between adjuvant radiotherapy & chemo okay?

Support Group: Pancreatic Cancer

Posted: Aug 18 2:54pm

I have mentored a patient with a starting CA19.9 value of 818,000 that peaked at 1,200,000...

https://connect.mayoclinic.org/comment/1087767/

Discussion: Tumour on pancreas 6cm, tumour markers 120,000: Need advice

Support Group: Pancreatic Cancer

Posted: Jun 16 9:33am

@howleegirl , this does not sound like a confidence-inspiring plan to me. Are they testing his...

https://connect.mayoclinic.org/comment/1119783/

Discussion: Why wait for Chemo???????

Support Group: Pancreatic Cancer

Posted: Aug 7 9:58pm

Lots of "It depends on..." in there, but FWIW: My level varied a bit in the...

https://connect.mayoclinic.org/comment/1035352/

Discussion: Pre-Whipple CA 19.9 levels. What was yours?

Support Group: Pancreatic Cancer

Posted: Mar 17 4:50pm

Yes, I was hesitant to switch so quickly, as I had read CA19 can increase the...

https://connect.mayoclinic.org/comment/941575/

Discussion: Has anyone left a dead tumor in?

Support Group: Pancreatic Cancer

Posted: Oct 4, 2023

Hi gamaryanne- how is your clinical trial going? What is the name of it? I’m considering...

https://connect.mayoclinic.org/comment/1115004/

Discussion: Options for unresectable tumor with SMV involvement

Support Group: Pancreatic Cancer

Posted: Jul 31 7:11am

Sitting in the chemo chair getting GAC #30 as I type. Just got my CA19-9 result...

https://connect.mayoclinic.org/comment/1037817/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 21 1:34pm

More important to know whether your margins were clear. I had positive 3 lymph nodes and...

https://connect.mayoclinic.org/comment/1118102/

Discussion: Anyone had pancreatic whipple surgery with a portal vein resection?

Support Group: Pancreatic Cancer

Posted: Aug 5 7:50am

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