Pancreatic Cancer Support Group

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I only got a so-so response to 6 months (12 rounds) of Folfirinox before Whipple. No...

https://connect.mayoclinic.org/comment/953877/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 25, 2023

@mmatunis , Disclaimer -- I have no medical training! I don't see the attachment, but 7...

https://connect.mayoclinic.org/comment/961552/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 9, 2023

Thank you again for your response. I am waiting to hear back from my oncologist about...

https://connect.mayoclinic.org/comment/962289/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 10, 2023

You're very welcome, and thank you for the good wishes. (FWIW, I forgot to mention I...

https://connect.mayoclinic.org/comment/961732/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 9, 2023

This is a bit odd. Were the first two locations reviewing the same scan(s) and then...

https://connect.mayoclinic.org/comment/966232/

Discussion: Switch from Folfirinox to Gem/Abrax due to non response

Support Group: Pancreatic Cancer

Posted: Nov 17, 2023

Hi @lizduffey , Sorry to hear about the diagnosis. Folfirinox is definitely not "the only" treatment...

https://connect.mayoclinic.org/comment/967233/

Discussion: Anyone have any experience with clinical trials or immunotherapy?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2023

I totally agree. With a history of cancer and low CA19-9 readings, I would encourage you...

https://connect.mayoclinic.org/comment/972015/

Discussion: Pseudo cyst / CA 19-9 trending up

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

Sorry to hear about the mets. My wife had folfirinox/oxalyplaten as her first line chemo and...

https://connect.mayoclinic.org/comment/705003/

Discussion: Pancreatic cancer became metastatic after cyberknife treatment

Support Group: Pancreatic Cancer

Posted: May 3, 2022

You might want to get more frequent CA19-9 tests. We heard all kinds of explanations for...

https://connect.mayoclinic.org/comment/698091/

Discussion: CA19-9 decreasing post surgery: Chose active surveillance over chemo

Support Group: Pancreatic Cancer

Posted: Apr 11, 2022

Your statement was encouraging for me as I had Stage !A and had a whipple four...

https://connect.mayoclinic.org/comment/697139/

Discussion: Anyone had Pancreatic Cancer in the head of the pancreas?

Support Group: Pancreatic Cancer

Posted: Apr 8, 2022

I have a history of obesity, thus diabetic and soft stools from IBS. I suddenly had...

https://connect.mayoclinic.org/comment/692679/

Discussion: Concerned: I'm beginning to suspect I have pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Mar 24, 2022

Thanks. I have gotten 2 second opinions. One at MUSC in Charleston, SC, the second at...

https://connect.mayoclinic.org/comment/826823/

Discussion: Advice needed about my Mom

Support Group: Pancreatic Cancer

Posted: Mar 16, 2023

I have had 16 sessions of filfirinox and now CA19-9s are slightly increasing and it is...

https://connect.mayoclinic.org/comment/824387/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 11, 2023

My husband has Stage 4 Pancreatic cancer and received 18 treatments with folfirinox regimen. New scans...

https://connect.mayoclinic.org/comment/824290/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 10, 2023

I do consider the quality of life vs treatment issues very seriously. I feel 100% now...

https://connect.mayoclinic.org/comment/808749/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 9, 2023

Hello there. Husband diagnosed in mid-Oct 2022 w/Stage 1, borderline resectable PC. Always looking for silver...

https://connect.mayoclinic.org/comment/805074/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 1, 2023

14 rounds of folfurinox shrunk tumor in tail of pancreas as well as metastases in liver....

https://connect.mayoclinic.org/comment/800480/

Discussion: Treatment options for pancreatic cancer stage 4?

Support Group: Pancreatic Cancer

Posted: Jan 22, 2023

Been a while so wanted to follow up. Since my mom switched to a new doctor...

https://connect.mayoclinic.org/comment/799355/

Discussion: CA 19-9 high but no malignancy

Support Group: Pancreatic Cancer

Posted: Jan 20, 2023

Chemo is going very well. My CA19-9 continues in the normal range. My next scan is...

https://connect.mayoclinic.org/comment/291686/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Sep 21, 2020

I've read so much about the CA19-9 markers and still get confused about it. I heard...

https://connect.mayoclinic.org/comment/291671/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Jul 14, 2020

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