Pancreatic Cancer Support Group

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Comments (866)

I was diagnosed with stage 3 pancreatic cancer in jan 2021. I have had Whipple surgery...

https://connect.mayoclinic.org/comment/852944/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 2, 2023

@denip: Adding my two cents. I had 8 rounds of Folfirinox, and for the 1st 4...

https://connect.mayoclinic.org/comment/956644/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Oct 31, 2023

The manufacturer (Bristol Myers Squibb / "BMS") has a program (at least in the USA) that...

https://connect.mayoclinic.org/comment/938094/

Discussion: Cancer drug cost in Ontario, Canada

Support Group: Pancreatic Cancer

Posted: Sep 28, 2023

NED is the term used that replaces “in remission” to better reflect what is going on....

https://connect.mayoclinic.org/comment/844457/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: Apr 17, 2023

@waltsocal , It's always good to "get everything in order" but not time to give up...

https://connect.mayoclinic.org/comment/995127/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 10 4:26pm

Sorry to hear about your second round of cancer. I have the utmost respect for anyone...

https://connect.mayoclinic.org/comment/677988/

Discussion: Cancer: Nothing about this is normal.

Support Group: Cancer: Managing Symptoms

Posted: Feb 5, 2022

Thank you so much for your thorough response and good thoughts! I was not aware of...

https://connect.mayoclinic.org/comment/922875/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Sep 2, 2023

Sitting in the chemo chair getting GAC #30 as I type. Just got my CA19-9 result...

https://connect.mayoclinic.org/comment/1037817/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 21 1:34pm

@rtw007 my wife was diagnosed at stage 3 in 2019 and immediately started folfirinox (including 5fu...

https://connect.mayoclinic.org/comment/611507/

Discussion: What chemo did you have with stage 4 pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Jun 25, 2021

Thanks for the feedback on your treatment. I met with my oncologist today. I have a...

https://connect.mayoclinic.org/comment/1006711/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 30 3:21pm

Maybe the genetic testing would not have changed anything. Maybe the treatments would have been the...

https://connect.mayoclinic.org/comment/289425/

Discussion: Recent diagnosis of pancreatic cancerous tumor - awaiting PET

Support Group: Pancreatic Cancer

Posted: Jan 11, 2020

Hi, I have not participated in awhile but have been reading daily posts. It is my...

https://connect.mayoclinic.org/comment/1029358/

Discussion: Onset of diabetes. Pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Mar 7 1:48pm

@jrgblue, I'm echoing and underscoring what everyone else has written: Stage IIB is NOT a death...

https://connect.mayoclinic.org/comment/971971/

Discussion: Is stage 2b pancreatic cancer a death sentence? Advice?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

Agree w/ @gamaryanne completely. You need to know your mutations to determine eligibility and best fit...

https://connect.mayoclinic.org/comment/915968/

Discussion: Importance of genetic testing for treatment

Support Group: Pancreatic Cancer

Posted: Aug 20, 2023

When I was diagnosed in 2012, my surgeon never directly told me what stage I was….only...

https://connect.mayoclinic.org/comment/876492/

Discussion: Struggling with my MD's style

Support Group: Pancreatic Cancer

Posted: Jun 11, 2023

@mmatunis , Disclaimer -- I have no medical training! I don't see the attachment, but 7...

https://connect.mayoclinic.org/comment/961552/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 9, 2023

I was diagnosed with Pancreatic Acinar Cell Carcinoma in June 2012 with the tumor 4cmx3cmx3cm on...

https://connect.mayoclinic.org/comment/1059508/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30 6:50am

Hello, I was diagnosed in March of 2022 with a pancreatic adenocarcinoma. After 7 rounds of...

https://connect.mayoclinic.org/comment/1012032/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 8 3:34pm

Thank you for all this information. How are you handling things so far? Who else have...

https://connect.mayoclinic.org/comment/887107/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jun 29, 2023

I am not a medical professional of any type, only a patient. So I can speak...

https://connect.mayoclinic.org/comment/1129068/

Discussion: CA19-9 rise while on maintenance chemo

Support Group: Pancreatic Cancer

Posted: Aug 23 5:15am

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