Pancreatic Cancer Support Group

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Comments (897)

I can so relate to your post (I had a resected PDAC w/KRAS mutation). My 20-month...

https://connect.mayoclinic.org/comment/869920/

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: May 31, 2023

Your oncologist can order the Signatera test for you. It is custom designed for you, using...

https://connect.mayoclinic.org/comment/882940/

Discussion: What were your tumor marker results at time of stage 4 diagnosis?

Support Group: Pancreatic Cancer

Posted: Jun 22, 2023

In your shoes and knowing what I know now, I would advocate for a PET scan....

https://connect.mayoclinic.org/comment/885908/

Discussion: Pancreatic Cancer Diagnosis

Support Group: Pancreatic Cancer

Posted: Jun 27, 2023

I do get my IV hydration at the cancer center. I always need it, twice per...

https://connect.mayoclinic.org/comment/889988/

Discussion: Problems with Dehydration: What do you do to keep hydrated?

Support Group: Pancreatic Cancer

Posted: Jul 4, 2023

Thanks very much for the background information and sharing tumor size. Three weeks ago a 1.8...

https://connect.mayoclinic.org/comment/859417/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 13, 2023

Yes, your comments are helpful. Since my earlier post I've had another ERCP, stent replacement, as...

https://connect.mayoclinic.org/comment/891349/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jul 6, 2023

Oct 2021 : Diagnosed stage 2, Resectable PDAC in pancreas head, ATM mutation Nov 2021 -...

https://connect.mayoclinic.org/comment/878649/

Discussion: My HIPEC experience and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

I get my treatment at May Clinic in Rochester, MInnesota. My Pancreatic group wanted 12 rounds...

https://connect.mayoclinic.org/comment/891428/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

In that brief 3.5-month period after the Whipple during which pathology, MRI, Signatera, Galleri, and CA19-9...

https://connect.mayoclinic.org/comment/893915/

Discussion: N.E.D. And other things that go bump in the night

Support Group: Pancreatic Cancer

Posted: Jul 11, 2023

Hello 199, Thank you for answering my questions which probably sounded a bit intrusive, but they...

https://connect.mayoclinic.org/comment/1026627/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 3 9:33am

@davod , You're very welcome, and I hope something in there "pans" out (pun intended) as...

https://connect.mayoclinic.org/comment/1027734/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 4 11:54pm

@davod , I'm also sorry to hear about your situation, but you deserve a real second...

https://connect.mayoclinic.org/comment/1027701/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 4 9:46pm

1. My pre-Whipple protocol was "TNT" -- Total Neoadjuvant Therapy. They wanted a "full course" (12...

https://connect.mayoclinic.org/comment/1008035/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 1 7:56pm

I’m being treated at Mayo in Rochester. The tumor was shrunken and considered dead. My CA19-9...

https://connect.mayoclinic.org/comment/1009348/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 4 9:57am

Are you speaking of the cancer antigen or marker blood test - CA19-9? Sometimes its reliability...

https://connect.mayoclinic.org/comment/1024185/

Discussion: Onset of diabetes. Pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Feb 28 8:35am

I had an allergic reaction to the CT contrast. I take high dosage prescribed benophen (benedryl-like)...

https://connect.mayoclinic.org/comment/935419/

Discussion: Contrast and MRI: Did you have a reaction? How was it handled?

Support Group: Pancreatic Cancer

Posted: Sep 24, 2023

As far as symptoms, I've had lower back problems for several years, oftentimes shooting pains up...

https://connect.mayoclinic.org/comment/939762/

Discussion: Cyst on Pancreas?

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

@marciak9 Have you done a CTDNA lately? While you may not have evidence of a solid...

https://connect.mayoclinic.org/comment/1010882/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 6 7:36pm

@gamaryanne , Did you mean Xeloda = Capecitabine, not cisplatin? https://www.gene.com/patients/medicines/xeloda :) @marciak9 , ctDNA is...

https://connect.mayoclinic.org/comment/1010959/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 6 10:28pm

Thank you to all. My prayers for all of you in your continued fight and wishing...

https://connect.mayoclinic.org/comment/1011331/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 7 2:24pm

Visiting Mayo Clinic

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Neuroendocrine Tumors (NETs)

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Cancer: Managing Symptoms

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