Pancreatic Cancer Support Group

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Comments (492)

Hello-we will be meeting with Dr. Mahipal in person tomorrow. My wife and I are very...

https://connect.mayoclinic.org/comment/285186/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 8, 2020

Finding a clinical trial can be a daunting task requiring perseverance. Precision Medicine (molecular profiling by...

https://connect.mayoclinic.org/comment/774223/

Discussion: Help Finding Clinical Trials

Support Group: Pancreatic Cancer

Posted: Nov 17, 2022

Hi @mmerry I am on the other side of this big country - Vancouver, and with...

https://connect.mayoclinic.org/comment/924566/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 5, 2023

I am in a Clinical Trial (you need a doctor's request for this). Talk to your...

https://connect.mayoclinic.org/comment/925336/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2023

Regarding the original post: I recommend trying to get all the appointments you want as soon...

https://connect.mayoclinic.org/comment/909734/

Discussion: How did you pick a hospital for pancreatic cancer care?

Support Group: Pancreatic Cancer

Posted: Aug 8, 2023

I know how he feels.I was first diagnosed in July 2022.One told me I could get...

https://connect.mayoclinic.org/comment/804686/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Feb 1, 2023

I am going to NCI in bethesda ,Md in june for screening for a clinical trial...

https://connect.mayoclinic.org/comment/866365/

Discussion: Help Finding Clinical Trials

Support Group: Pancreatic Cancer

Posted: May 25, 2023

(Sorry for context, but I was typing my reply when the last two above were submitted,...

https://connect.mayoclinic.org/comment/978120/

Discussion: Tumor can’t be removed: What are chances of survival now?

Support Group: Pancreatic Cancer

Posted: Dec 10, 2023

I was on the folfirnox but it wasn't working.I am now on a clinical trial at...

https://connect.mayoclinic.org/comment/981496/

Discussion: Tumor can’t be removed: What are chances of survival now?

Support Group: Pancreatic Cancer

Posted: Dec 16, 2023

In case you weren't already familiar with the "T2" meaning, it's a scale called the "TNM"...

https://connect.mayoclinic.org/comment/910388/

Discussion: New, overwhelmed: What's microsatellite stable?

Support Group: Pancreatic Cancer

Posted: Aug 9, 2023

@stageivsurvivor : Apologies for not quite understanding, but do you attribute your "I'm cured" status to...

https://connect.mayoclinic.org/comment/960828/

Discussion: Questions about maintenance chemotherapy

Support Group: Pancreatic Cancer

Posted: Nov 7, 2023

One extra postscript regarding trials: What I've found about trials is that no matter who your...

https://connect.mayoclinic.org/comment/954163/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 26, 2023

Something to point out concerning the National Pancreas Foundation and their list of centers of excellence...

https://connect.mayoclinic.org/comment/962350/

Discussion: Where is best place to go for second opinion for stage 4 pancreatic?

Support Group: Pancreatic Cancer

Posted: Nov 10, 2023

His surgery was July 13th. He is doing very well. He had his chemo consult the...

https://connect.mayoclinic.org/comment/916608/

Discussion: Anyone had pancreatic cancer mets to lymph nodes only?

Support Group: Pancreatic Cancer

Posted: Aug 21, 2023

@mnewland99 Regarding the KRAS G12-D-have you found a clinical trial that is open ?

https://connect.mayoclinic.org/comment/975295/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Dec 5, 2023

Hi I was diagnosed in May 2023 with stage 4 PDAC with large mass in pancreas...

https://connect.mayoclinic.org/comment/996737/

Discussion: Pancreatic Cancer spread to the liver: What's next?

Support Group: Pancreatic Cancer

Posted: Jan 13 4:01pm

(m)Folfirinox is still the gold standard and used first in those patients age 70 or younger...

https://connect.mayoclinic.org/comment/1015707/

Discussion: FDA approves new first line treatment option for metastatic pancreatic

Support Group: Pancreatic Cancer

Posted: Feb 14 12:48pm

On immunotherapy: I started Folfirinox treatment together with clinical trial drug Nivolumab, an immunotherapy drug back...

https://connect.mayoclinic.org/comment/968642/

Discussion: Anyone have any experience with clinical trials or immunotherapy?

Support Group: Pancreatic Cancer

Posted: Nov 21, 2023

My husband was diagnosed in April 2023 Adenocarcinoma of the pancreas has had surgery to bypass...

https://connect.mayoclinic.org/comment/995427/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 11 8:21am

I was diagnosed in 2012 with stage IV acinar cell carcinoma. This type by itself does...

https://connect.mayoclinic.org/comment/1017488/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 17 1:08pm