Pancreatic Cancer Support Group

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Comments (1,027)

I don't have personal experience, but I believe you are getting the combo-drug Folfirinox minus the...

https://connect.mayoclinic.org/comment/871321/

Discussion: Nothing left to offer in the way of therapy?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023

Speaking from my dad’s experience- the neuropathy was much worse when he was on the folfirinox....

https://connect.mayoclinic.org/comment/955442/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Oct 28, 2023

Hi @kirdyq, you may also be interested in these related discussions: - Anyone on Gemcitabine with...

https://connect.mayoclinic.org/comment/968215/

Discussion: Switch from Folfirinox to Gem/Abrax due to non response

Support Group: Pancreatic Cancer

Posted: Nov 20, 2023

My wife had 9 Folfirinox treatments before SBRT and surgery. She was scheduled to get 4-6...

https://connect.mayoclinic.org/comment/636716/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 18, 2021

These are some links describing pro-active measures to prevent/lessen peripheral neuropathy- NEUROPATHY PREVENTION WHEN TAKING FOLFIRINOX/ICING...

https://connect.mayoclinic.org/comment/835861/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: Apr 1, 2023

capricorn, I may have asked, already - sorry if I have. Is your mom being treated...

https://connect.mayoclinic.org/comment/975084/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Dec 4, 2023

I completed 13 rounds of folfirinox about 8 weeks ago. The neuropathy is much much much...

https://connect.mayoclinic.org/comment/1375999/

Discussion: Neuropathy in feet after completing Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 21 12:45pm

I had a Whipple operation August 2023. Bud they had to stop the operation because of...

https://connect.mayoclinic.org/comment/1247764/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Mar 1 6:16am

@allboyzoo Best wishes and prayers for you and your husband. My wife was diagnosed at stage...

https://connect.mayoclinic.org/comment/285293/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 29, 2021

Here is a reason why the NAPOLi trial was done comparing Nalirifox to Gemzar/Abraxane first and...

https://connect.mayoclinic.org/comment/1016200/

Discussion: FDA approves new first line treatment option for metastatic pancreatic

Support Group: Pancreatic Cancer

Posted: Feb 15, 2024

I had the original formulation of Folfirinox that was 20% higher concentration than (m)Folfirinox in use...

https://connect.mayoclinic.org/comment/892452/

Discussion: Seeking a second opinion

Support Group: Pancreatic Cancer

Posted: Jul 8, 2023

I had 13 rounds of folfirinox. The neuropathy at the end of chemo and continuing is...

https://connect.mayoclinic.org/comment/1379769/

Discussion: Neuropathy in feet after completing Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 26 12:10pm

@lilliejane2, checking in. How are you doing with the first Folfirinox treatment minus the oxaliplatin?

https://connect.mayoclinic.org/comment/945616/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Oct 10, 2023

Can't answer for Mayo, but my sister's response to her TENTH cycle of folfirinox was to...

https://connect.mayoclinic.org/comment/793364/

Discussion: Immune system after Folfirinox: What precautions are necessary?

Support Group: Pancreatic Cancer

Posted: Jan 6, 2023

@pcand52, how are you doing on the FOLFIRINOX chemo regimen? What cycle are you currently on?

https://connect.mayoclinic.org/comment/1251203/

Discussion: How many FOLFIRINOX cycles are enough?

Support Group: Pancreatic Cancer

Posted: Mar 5 3:48pm

I initially went thru 12 FOLFIRINOX , the last one w/o oxaliplatin. About 6 months later...

https://connect.mayoclinic.org/comment/945750/

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Oct 11, 2023

Yes Naliri is similar to Folfirinox, but no Oxaliplatin, and the irinitocan is liposomal, supposed to...

https://connect.mayoclinic.org/comment/1332885/

Discussion: Anyone familiar with the clinical trial RMC-6236? Or how to enroll?

Support Group: Pancreatic Cancer

Posted: Jun 22 3:25pm

Hello! I had the same thing happen to me-a delay in chemo due to low platelet...

https://connect.mayoclinic.org/comment/1409518/

Discussion: Low platelet count and delay of chemo

Support Group: Pancreatic Cancer

Posted: Oct 6 9:30am

@gamaryanne , are you on "NALIRI" (nano-liposomal irinotecan) by itself, or "NALIRIFOX" (Folfirinox with Naliri replacing...

https://connect.mayoclinic.org/comment/1302084/

Discussion: Blood Clots from Chemo?

Support Group: Pancreatic Cancer

Posted: May 11 7:27pm

Not whole fair enough, It is supposed to be Folfirinox. I should have proof read before...

https://connect.mayoclinic.org/comment/851935/

Discussion: GemAbraxane Side Effects

Support Group: Pancreatic Cancer

Posted: Apr 30, 2023

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