Pancreatic Cancer Support Group

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Comments (493)

My results after 5 days hiding the over the counter enzyme replacement tablets…they seem to work...

https://connect.mayoclinic.org/comment/904444/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 30, 2023

Thank you for sharing your story. Will definitely look into the protein powder. We too are...

https://connect.mayoclinic.org/comment/866871/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 26, 2023

A Whipple surgery is a major operation where doctors remove the part of the pancreas that...

https://connect.mayoclinic.org/comment/1543397/

Discussion: Pancreas 6mm cyst

Support Group: Pancreatic Cancer

Posted: Apr 5 1:30pm

@robertf0741, you got some great tips from @howleegirl and @markymarkfl. @lvtexas @kim1965 may also have tips...

https://connect.mayoclinic.org/comment/938898/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Sep 29, 2023

C) How prominent is diabetes following Whipple procedure? Being healthy and active, major post-operative issues or...

https://connect.mayoclinic.org/comment/1286199/

Discussion: Accidental Mixed-Duct IPMN? Straight to Whipple procedure?

Support Group: Pancreatic Cancer

Posted: Apr 20, 2025

Thank you for all that information. It was reo months before an enzyme, Zenpep, was prescribed...

https://connect.mayoclinic.org/comment/1026758/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 3, 2024

@blackie17 Tom, I am not feeling well. They just RX’d me a pancreatic enzyme replacement. I’m...

https://connect.mayoclinic.org/comment/1438814/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 14, 2025

I came home Saturday, he did another Whipple and attached the pancreas duct to the stomach....

https://connect.mayoclinic.org/comment/875139/

Discussion: In hospital had infection in pancreas

Support Group: Pancreatic Cancer

Posted: Jun 8, 2023

Hi @mscarano and welcome to the pancreatic cancer support group on Mayo Clinic Connect. I think...

https://connect.mayoclinic.org/comment/285264/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 23, 2020

Did a member of your care team prescribe a pancrealipase like Creon or Zenpep after the...

https://connect.mayoclinic.org/comment/1026726/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 3, 2024

Thank you very much for your detailed explanation. I will start my enzyme regimen by following...

https://connect.mayoclinic.org/comment/967888/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 20, 2023

@johnny1955 I had Whipple done 8/25 Had the same problem. Frequent loose stool then I lost...

https://connect.mayoclinic.org/comment/1506642/

Discussion: Newly diagnosed. What helps control symptoms of gas and bloating?

Support Group: Pancreatic Cancer

Posted: Feb 15 4:38pm

What do you do if your body does not emit tumor markers? CA19-9 and CEA show...

https://connect.mayoclinic.org/comment/883204/

Discussion: What were your tumor marker results at time of stage 4 diagnosis?

Support Group: Pancreatic Cancer

Posted: Jun 22, 2023

Hello. I am caregiver for my husband who was diagnosed with pancreatic cancer in Feb. 2023....

https://connect.mayoclinic.org/comment/1192214/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 17, 2024

I thought so too but the gastroenterologist is watching them. My blood sugars are high at...

https://connect.mayoclinic.org/comment/910261/

Discussion: Anyone have high liver numbers in bloodwork after Whipple?

Support Group: Pancreatic Cancer

Posted: Aug 9, 2023

Losing weight after Whipple surgery is common, I’ve lost 30 lbs over eight months while on...

https://connect.mayoclinic.org/comment/1488665/

Discussion: Losing weight after Whipple surgery: Why? Any advice?

Support Group: Pancreatic Cancer

Posted: Jan 22 9:30am

I have had struggles with enzyme treatments as well and the pancreatic team nutritionist has worked...

https://connect.mayoclinic.org/comment/885272/

Discussion: Color me confused (2 questions)

Support Group: Pancreatic Cancer

Posted: Jun 26, 2023

stageivsuvivor - Thank you. I was unaware of the substitution option of Folfiri for Oxaliplatin. Likewise,...

https://connect.mayoclinic.org/comment/904299/

Discussion: Changing chemo regimen after 4 cycles of Folfirinox?

Support Group: Pancreatic Cancer

Posted: Jul 29, 2023

Hi Vera, In addition to the helpful tips from @bb21 you may also appreciate the comments...

https://connect.mayoclinic.org/comment/712684/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: May 30, 2022

Is this the product you were referring to? https://www.pureencapsulations.com/pancreatic-enzyme-formula.html I believe that my wife is allergic...

https://connect.mayoclinic.org/comment/208584/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

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