Pancreatic Cancer Support Group

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Comments (491)

I am a 2 year survivor but recently spent 2 weeks in hospital with a blocked...

https://connect.mayoclinic.org/comment/891737/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

I had a distal pancreatectomy/splenectomy in 2016 (7 years ago). At that time I was in...

https://connect.mayoclinic.org/comment/881458/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Jun 19, 2023

Nice summary of Zenpep vs Creon here: https://www.nicerx.com/compare/zenpep-vs-creon/ Looks like all the same ingredients (lipase, protease,...

https://connect.mayoclinic.org/comment/878445/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

Thanks, I hope things are going better for you. He is on Zenpep enzymes 40,000u 3...

https://connect.mayoclinic.org/comment/866304/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 25, 2023

After reading on here what people are taking it does sound low....My worry is he is...

https://connect.mayoclinic.org/comment/861000/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 17, 2023

Sorry to hear it. What type of chemo are you on, and when did you start...

https://connect.mayoclinic.org/comment/860461/

Discussion: So sick after first round of chemo: What can I do to help?

Support Group: Pancreatic Cancer

Posted: May 15, 2023

Have you tried the pancrealipase dosing calculator at https://digestthis.ca It eliminates a lot of the guess...

https://connect.mayoclinic.org/comment/857736/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

Yes, I had onset of burping a few days after darkening of urine which was my...

https://connect.mayoclinic.org/comment/857722/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856182/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 8, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856178/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: May 8, 2023

@jsd , The first indication of my PC was elevated liver enzymes due to my bile...

https://connect.mayoclinic.org/comment/856062/

Discussion: Terrified I have pancreatic cancer due to my symptoms and history

Support Group: Pancreatic Cancer

Posted: May 7, 2023

Thank you, I am going to look into a second opinion and have never heard of...

https://connect.mayoclinic.org/comment/839925/

Discussion: Problems with enzymes and supplements

Support Group: Pancreatic Cancer

Posted: Apr 8, 2023

My husband celebrated his one year Whipple surgery in February. He had a “rarest of rare...

https://connect.mayoclinic.org/comment/257698/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Apr 11, 2019

I’m sorry to hear that you’ve been diagnosed with pancreatic cancer. It’s not a cancer you...

https://connect.mayoclinic.org/comment/1218831/

Discussion: Diagnosed with Pancreatic Cancer: How to deal with anxiety of surgery?

Support Group: Pancreatic Cancer

Posted: Jan 22, 2025

What issues are you having with digestion? Are you taking enzymes? Have you changed your diet...

https://connect.mayoclinic.org/comment/1199994/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 29, 2024

That’s interesting. I stay away from processed foods as much as possible, I read every label...

https://connect.mayoclinic.org/comment/1189965/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Dec 13, 2024

Thank you for the link. I did find that and the info seems a bit foggy....

https://connect.mayoclinic.org/comment/1174154/

Discussion: Tell me anything you know about ALT Phos

Support Group: Pancreatic Cancer

Posted: Nov 15, 2024

Creon enzymes, eatent with each meal, helps my wife's pancreas with digestion. Then Kates Farm a...

https://connect.mayoclinic.org/comment/1288144/

Discussion: Severe weight loss with pancreatic cancer: What can be done?

Support Group: Pancreatic Cancer

Posted: Apr 23, 2025

Christie, My wife went through a total pancreatectomy almost 9 years ago. It was accidentally found...

https://connect.mayoclinic.org/comment/1270770/

Discussion: Total pancreatectomy challenges

Support Group: Pancreatic Cancer

Posted: Mar 31, 2025

I would talk to your health care provider about the enzymes . They are designed to...

https://connect.mayoclinic.org/comment/1315607/

Discussion: Pancreatic enzymes: They are expensive, any suggestions?

Support Group: Pancreatic Cancer

Posted: May 29, 2025