Pancreatic Cancer Support Group

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Comments (491)

I had my Whipple in 2012 but was not prescribed pancrealipase initially. Having exocrine pancreas insufficiency...

https://connect.mayoclinic.org/comment/1058886/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Apr 28, 2024

I had a Whipple 5/13/22 at age 70. Eating small amounts of food throughout the day...

https://connect.mayoclinic.org/comment/1058236/

Discussion: Expert help with proper dosing of Zenpep enzymes after Whipple

Support Group: Pancreatic Cancer

Posted: Apr 27, 2024

Just so you know, I had the Whipple. I take enzymes each time I put something...

https://connect.mayoclinic.org/comment/1056489/

Discussion: Did anyone start out having pancreatic cysts that became cancer later?

Support Group: Pancreatic Cancer

Posted: Apr 24, 2024

I get the same drugs plus cisplatin. I've not had the knee pain, but I do...

https://connect.mayoclinic.org/comment/1053345/

Discussion: Loose motion from gemcitabine+abraxane

Support Group: Cancer: Managing Symptoms

Posted: Apr 18, 2024

Last told, I had an MRCP concerning for mass or stricture with an EUS/ERCP scheduled for...

https://connect.mayoclinic.org/comment/1049804/

Discussion: Talked to hepatologist re: abnormal MRCP

Support Group: Pancreatic Cancer

Posted: Apr 12, 2024

First, I am very sorry that you are facing this journey-how brave you must be! And...

https://connect.mayoclinic.org/comment/1043278/

Discussion: Talked to hepatologist re: abnormal MRCP

Support Group: Pancreatic Cancer

Posted: Mar 31, 2024

Thanks for commenting. I had the blood test in early '23 and it was only very...

https://connect.mayoclinic.org/comment/1042922/

Discussion: Talked to hepatologist re: abnormal MRCP

Support Group: Pancreatic Cancer

Posted: Mar 30, 2024

@cealia56 , I went about 5 weeks between diagnosis and first chemo, in part due to...

https://connect.mayoclinic.org/comment/1036783/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 19, 2024

@lightandhope , You're very welcome. Two other thoughts/angles I forgot to mention: 1) CEA is another...

https://connect.mayoclinic.org/comment/1007799/

Discussion: Question about family genetics and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 1, 2024

PARP’s are used as maintenance therapy after primary chemo has lowered the tumor burden. Chemo itself...

https://connect.mayoclinic.org/comment/987280/

Discussion: Tumor can’t be removed: What are chances of survival now?

Support Group: Pancreatic Cancer

Posted: Dec 27, 2023

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

I don't have a comprehensive answer for that, but sometimes diabetes sneaks up on you along...

https://connect.mayoclinic.org/comment/985310/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

Good morning. I am eight weeks out from having the Whipple. I am taking pancreatic enzymes....

https://connect.mayoclinic.org/comment/964745/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 14, 2023

Moffitt is listed by NPF as a pancreatic cancer CoE, and by the NCI as a...

https://connect.mayoclinic.org/comment/955762/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 29, 2023

Disclaimer: I have zero medical training... I don't know anything about the colloid type, but 8cm...

https://connect.mayoclinic.org/comment/922200/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Aug 31, 2023

Milk has carbohydrates for the low blood sugar but also has fats. Fats could be a...

https://connect.mayoclinic.org/comment/920318/

Discussion: Pancreatic attack and right side pain

Support Group: Pancreatic Cancer

Posted: Aug 28, 2023

A few more questions that popped into my head: 19) A: What do I need to...

https://connect.mayoclinic.org/comment/912772/

Discussion: Which questions should I ask my surgeon? (I think Whipple is likely.)

Support Group: Pancreatic Cancer

Posted: Aug 14, 2023

Thanks for asking. The day after I last made a comment on this thread I was...

https://connect.mayoclinic.org/comment/910450/

Discussion: Changing chemo regimen after 4 cycles of Folfirinox?

Support Group: Pancreatic Cancer

Posted: Aug 10, 2023

In case you weren't already familiar with the "T2" meaning, it's a scale called the "TNM"...

https://connect.mayoclinic.org/comment/910388/

Discussion: New, overwhelmed: What's microsatellite stable?

Support Group: Pancreatic Cancer

Posted: Aug 9, 2023

@masha123 , My neurologist just informed me last week that too much B6 or B12 can...

https://connect.mayoclinic.org/comment/892978/

Discussion: Seeking a second opinion

Support Group: Pancreatic Cancer

Posted: Jul 9, 2023