Pancreatic Cancer Support Group

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Comments (494)

Moffitt is listed by NPF as a pancreatic cancer CoE, and by the NCI as a...

https://connect.mayoclinic.org/comment/955762/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 29, 2023

Disclaimer: I have zero medical training... I don't know anything about the colloid type, but 8cm...

https://connect.mayoclinic.org/comment/922200/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Aug 31, 2023

Milk has carbohydrates for the low blood sugar but also has fats. Fats could be a...

https://connect.mayoclinic.org/comment/920318/

Discussion: Pancreatic attack and right side pain

Support Group: Pancreatic Cancer

Posted: Aug 28, 2023

A few more questions that popped into my head: 19) A: What do I need to...

https://connect.mayoclinic.org/comment/912772/

Discussion: Which questions should I ask my surgeon? (I think Whipple is likely.)

Support Group: Pancreatic Cancer

Posted: Aug 14, 2023

Thanks for asking. The day after I last made a comment on this thread I was...

https://connect.mayoclinic.org/comment/910450/

Discussion: Changing chemo regimen after 4 cycles of Folfirinox?

Support Group: Pancreatic Cancer

Posted: Aug 10, 2023

In case you weren't already familiar with the "T2" meaning, it's a scale called the "TNM"...

https://connect.mayoclinic.org/comment/910388/

Discussion: New, overwhelmed: What's microsatellite stable?

Support Group: Pancreatic Cancer

Posted: Aug 9, 2023

@masha123 , My neurologist just informed me last week that too much B6 or B12 can...

https://connect.mayoclinic.org/comment/892978/

Discussion: Seeking a second opinion

Support Group: Pancreatic Cancer

Posted: Jul 9, 2023

I am a 2 year survivor but recently spent 2 weeks in hospital with a blocked...

https://connect.mayoclinic.org/comment/891737/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

I had a distal pancreatectomy/splenectomy in 2016 (7 years ago). At that time I was in...

https://connect.mayoclinic.org/comment/881458/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Jun 19, 2023

Nice summary of Zenpep vs Creon here: https://www.nicerx.com/compare/zenpep-vs-creon/ Looks like all the same ingredients (lipase, protease,...

https://connect.mayoclinic.org/comment/878445/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

Thanks, I hope things are going better for you. He is on Zenpep enzymes 40,000u 3...

https://connect.mayoclinic.org/comment/866304/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 25, 2023

After reading on here what people are taking it does sound low....My worry is he is...

https://connect.mayoclinic.org/comment/861000/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 17, 2023

Sorry to hear it. What type of chemo are you on, and when did you start...

https://connect.mayoclinic.org/comment/860461/

Discussion: So sick after first round of chemo: What can I do to help?

Support Group: Pancreatic Cancer

Posted: May 15, 2023

Have you tried the pancrealipase dosing calculator at https://digestthis.ca It eliminates a lot of the guess...

https://connect.mayoclinic.org/comment/857736/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

Yes, I had onset of burping a few days after darkening of urine which was my...

https://connect.mayoclinic.org/comment/857722/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856182/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 8, 2023

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856178/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: May 8, 2023

@jsd , The first indication of my PC was elevated liver enzymes due to my bile...

https://connect.mayoclinic.org/comment/856062/

Discussion: Terrified I have pancreatic cancer due to my symptoms and history

Support Group: Pancreatic Cancer

Posted: May 7, 2023

Thank you, I am going to look into a second opinion and have never heard of...

https://connect.mayoclinic.org/comment/839925/

Discussion: Problems with enzymes and supplements

Support Group: Pancreatic Cancer

Posted: Apr 8, 2023

Oh thank goodness on your c19-9 My last scan was same and markers were good Ive...

https://connect.mayoclinic.org/comment/811355/

Discussion: Surgical options for borderline resectable/locally advanced tumors

Support Group: Pancreatic Cancer

Posted: Feb 14, 2023

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