Pancreatic Cancer Support Group

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Comments (491)

Do you know the name of the blood test used to diagnose you? In reality there...

https://connect.mayoclinic.org/comment/1165459/

Discussion: Has anyone had any experience taking the drug Ursodiol?

Support Group: Pancreatic Cancer

Posted: Oct 30, 2024

My wife the patient. PADC, Stage 4, Tail. Now 4 months Folfirinox chemo. Let the doctors...

https://connect.mayoclinic.org/comment/1286278/

Discussion: Support for caregivers: I feel helpless not being able to fix things

Support Group: Pancreatic Cancer

Posted: Apr 20, 2025

I too had pc. I had abdominal pain, orange tinged urine and very grey bowels. Lost...

https://connect.mayoclinic.org/comment/280294/

Discussion: Can someone help...terrified: Need info on pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Oct 24, 2019

At least you have ruled out that much. I'm sorry you are going through all that...

https://connect.mayoclinic.org/comment/1204795/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: Jan 5, 2025

The bilary stent was put in his common bile duct because he became jaundiced due to...

https://connect.mayoclinic.org/comment/1395563/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 17, 2025

My understanding is that if you have PC your pancreas may not be putting out enough...

https://connect.mayoclinic.org/comment/1405425/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Sep 30, 2025

Hello I had a distal pancreatectomy/splenectomy about 5 years ago at UCLA and it was about...

https://connect.mayoclinic.org/comment/721835/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Jun 28, 2022

Oh thank goodness on your c19-9 My last scan was same and markers were good Ive...

https://connect.mayoclinic.org/comment/811355/

Discussion: Surgical options for borderline resectable/locally advanced tumors

Support Group: Pancreatic Cancer

Posted: Feb 14, 2023

Hi love, No, I've had no surgeries, radiation, however I was on the lanotride shots for...

https://connect.mayoclinic.org/comment/803503/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 29, 2023

In 2008 at age 43 with 2 young daughters, I felt silly going to a new...

https://connect.mayoclinic.org/comment/792474/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 4, 2023

My sister was diagnosed with PNET. They went in to do the surgery to remove half...

https://connect.mayoclinic.org/comment/780856/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2022

Gas can result from insufficient pancreatic enzymes. There is a medication called Creon that is prescribed...

https://connect.mayoclinic.org/comment/779138/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 30, 2022

So my interleukin 6 level came back wildly elevated--the norm is 5 pg/mL, and mine is...

https://connect.mayoclinic.org/comment/709845/

Discussion: Concerned: I'm beginning to suspect I have pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 20, 2022

Try pancreatic enzymes from pure encapsulations. You can get it from Amazon. One capsule before and...

https://connect.mayoclinic.org/comment/208604/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 2, 2020

I also am not a doctor, but have experience with a loved one, so take this...

https://connect.mayoclinic.org/comment/1157606/

Discussion: Diagnosed with Stage IV pancreatic cancer: Not going well, need advice

Support Group: Pancreatic Cancer

Posted: Oct 15, 2024

My tumor was found as a result of it blocking off my bile duct. It first...

https://connect.mayoclinic.org/comment/1148426/

Discussion: What are we looking at?

Support Group: Pancreatic Cancer

Posted: Sep 27, 2024

I take Zenpep as well and utilize Nestle’s program. I’ve taken Creon and not noticed any...

https://connect.mayoclinic.org/comment/1143518/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Sep 18, 2024

@cb4ca how long have you been diagnosed with PBC? It’s been a year since I was....

https://connect.mayoclinic.org/comment/1127485/

Discussion: Has anyone had any experience taking the drug Ursodiol?

Support Group: Pancreatic Cancer

Posted: Aug 20, 2024

Generally the combo regimen Folfirinox is used in individuals age 70 and under unless the patients...

https://connect.mayoclinic.org/comment/1105107/

Discussion: 5fu/irinotecan vs gen/abraxane side effects in senior women

Support Group: Pancreatic Cancer

Posted: Jul 13, 2024

I've also experienced some inconveniences I hope developers will consider addressing: 1) Messages that fail to...

https://connect.mayoclinic.org/comment/1076023/

Discussion: Frustrated with this site: ideas for functionality improvement

Support Group: Pancreatic Cancer

Posted: May 28, 2024